European organisations join forces to shine spotlight on cardiovascular health
Today, SAFE joins the European Alliance for Cardiovascular Health calling for European action on CVD including stroke.
Grethe Lunde, stroke survivor, says
“When I was 22 years old, I had a stroke. That was 27 years ago. I know the devastating impact a stroke has not only on the stroke survivor but also on friends and family.
Stroke is the second leading cause of death and the biggest cause of adult disability in Europe. Sadly, despite these facts, stroke is often overlooked and underfunded.”
Arlene Wilkie, SAFE Director General, says
“Together under the umbrella of the European Alliance for Cardiovascular Health, we will have a bigger, stronger, united voice which will help raise the profile and shine a spotlight on stroke and ensure that every life saved is a live worth living.”
The full press release is here:
European organisations join forces to shine spotlight on cardiovascular health
Topics: Cardiovascular prevention, policy, research, innovation, patients with cardiovascular disease
Embargo: 27 September 2021 at 07:00 CEST
Brussels, 27 September 2021: The European Alliance for Cardiovascular Health1 launches today to raise awareness of the burden of cardiovascular disease (CVD) and call for action from European decision-makers.
The announcement comes ahead of World Heart Day on 29 September.
CVD is a group of conditions affecting the heart or blood vessels – they prominently include heart attacks and strokes, as well as arrhythmias and congenital heart disease. CVD is closely interlinked with other chronic diseases, such as diabetes or kidney disease, but also vascular dementia which is often caused by heart disease and stroke.
CVD is the leading cause of death worldwide. In 2019, an estimated 17.9 million people died from CVD, representing 32% of all global deaths. Of these deaths, 85% were due to heart attack and stroke2. CVD is also the leading cause of death in the European region, accounting for 47% of all deaths in women and 39% in men3.
In the EU, CVD accounts for 36% of all deaths and impacts the lives of some 60 million people who live with cardiovascular conditions. CVD is not limited to the elderly, but heavily impacts people of all ages. Around 20% of all premature deaths (before the age of 65) in the EU are caused by CVD4.
To ensure that Europe’s strategy for tackling CVD matches the scale of this collective challenge, the Alliance brings together, for the first time ever, 15 leading European and international organisations representing the full range of health actors. Together they offer an extraordinary wealth of knowledge in cardiovascular health.
Collectively, the Alliance represents:
· tens of millions of patients.
· more than 200,000 health professionals.
· over 400 health technology companies.
· health insurers covering the medical costs of more than 200 million people.
· millions of people living with genetic CVD risk factors but who have not been diagnosed yet.
The Alliance’s partners are committed to joining forces and sharing expertise to:
· raise awareness of the burden of CVD on society.
· call for a European CVD Plan to improve cardiovascular health, optimise quality of life in patients and undiagnosed citizens with CVD, and prevent first and subsequent heart events and strokes.
· advise policymakers on actions to improve cardiovascular health and to prevent CVD in Europe, thereby making the population more resilient to future pandemics and other health threats.
· mobilise investment for CVD research and promote public-private partnerships in CVD innovation.
· ensure swift and equitable access to new medical technologies and medicines that add value to patients and society.
In its first meeting today, information on the European Alliance for Cardiovascular Health is complemented by personal stories from patients about living with heart disease and stroke, giving insights into the needs of those with CVD and thus setting the European policy agenda. Policy debates follow, with EU decision-makers giving feedback on the Alliance’s proposals and paving the way for a constructive and forward-looking collaboration.
Jouzas Olekas, MEP Heart Group Supporter said: “The EU must act decisively to improve the cardiovascular health of European citizens and to create a strong as well as holistic European Health Union. Now is the time to tackle the increasing burden of cardiovascular disease and ensure that everyone can live longer, healthier lives – regardless of where they were born or live – and continue to contribute to society.”
Note to the editor:
For press queries, please contact the European Alliance for Cardiovascular Health Secretariat: firstname.lastname@example.org
1 www.caridovascular-alliance.eu 2 World Health Organization Fact Sheets: https://www.who.int/news-room/fact-sheets/detail/cardiovascular-diseases-(cvds) 3 ESC Cardiovascular Realities 2020 4 ESC-EHN, Fighting Cardiovascular Disease: a blueprint for EU action: https://www.mepheartgroup.eu/wp-content/uploads/05748-CVD-plan_FINAL.pdf
We are delighted to let you know that Jana Dobrkovská from stroke support organisation Cerebrum in the Czech Republic is our final speaker, joining Professor Carlo Semenza (Italy) and Dr Carla Pereira (Portugal) for our next Life After Stroke webinar on Caring for the Caregiver on Wednesday 29 September.
Book your free place here
And find out more about the programme here
Organised by the European Heart Network and the European Society of Cardiologists – register for the webinar for free via this link.
If COVID-19 has learnt one lesson, is that there is an urgent need for more EU coordination on health. Diseases – whether they are infectious or not – do not stop at borders. Cardiovascular diseases remain the leading cause of death in Europe, and impact 60 million people every year.
Cardiovascular diseases will directly or indirectly impact all of us at some point in our lives. Impacting people of all ages, the diseases are not always preventable, as many conditions can be inherited, caused by other chronic conditions or their treatments, or others incur due to ageing. To improve the health and quality of life of people affected by these diseases, there is a need for more. More research, more investments, more innovation, more policy.
It’s time for the EU and Member States to act.
Join the founding organisations of the European Alliance for Cardiovascular Health, representatives of the European Commission, Member States and European Parliament for a virtual policy debate that will mark the launch of the Alliance and discuss policy actions to improve cardiovascular care for citizens across the EU.
Speakers and panellists
- Ms Tatjana Kirchner, Germany
- Ms Grethe Lunde, Norway
- Professor Stephan Achenbach, President of the European Society of Cardiology
- Bernt Bieber, President of COCIR
- Arlene Wilkie, Director General of Stroke Alliance for Europe (SAFE)
- Neil Johnson, Executive Director of Global Heart Hub
- Janneke van der Kamp, Cardiovascular Network, EFPIA
- Floris Italianer, President of the European Heart Network
- Jean-Luc Lemercier, Chair of the Cardiovascular Sector Group, MedTech Europe
- Marius Geanta, Board member, FH Europe
- Directorate, Slovenian Ministry of Health, Slovenian Presidency of the EU Council
- Pierre Delsaux, Deputy Director General, DG Sante European Commission
- MEP Juozas Olekas, Former Lithuanian Health Minister, Supporter of the European Parliament (MEP) Heart Group
The World Stroke Organisation is running a series of free workshops for anyone interested in getting their campaign plans in better shape, or working on specific communication skills.
Developed with input from non-communicable disease, and stroke advocacy and awareness campaign leaders, participants will be able to explore scenarios, engage with a case study and think about how to develop awareness and advocacy campaign strategies and employ tactics that can help deliver local change.
23 September – 3pm CEST
What needs to change? Using local data to identify needs and campaign for change in stroke prevention, treatment and support.
30 September – 3pm CEST
Community connection Engaging communities and amplifying patient voice in awareness and advocacy campaigns.
7 October – 3pm CEST
Where the magic happens Adapting global campaign strategies and choosing communication tactics to increase awareness and engagement.
For more details and registration here
Register NOW for FREE for the Life after stroke: caring for the caregiver webinar: bit.ly/3xucXqx
At this meeting we will address some of the challenging aspects posed to informal carers and the impact that caring for a stroke survivor might have on their lives. It will also cover predictors of wellbeing and resilience in carers and good practice examples of carer support and how to implement them.
Find out more about this event here: www.eslaf.org
The Action Statement on Heart Failure launched on 7 September 2021 outlines policy recommendations and urges the EU to recognise heart failure as a health priority.
The statement supports growing calls for the development of an EU Action Plan on Cardiovascular Disease, similar to Europe’s Beating Cancer Plan. Click here to find out more.
We are delighted to let you know that Professor Carlo Semenza from Italy and Dr Nuno Ferreira, Professor of Clinical Health Psychology at the University of Nicosia will be presenting at the Life After Stroke: caring for the caregiver webinar on 29 September 2021.
They will be joined by stroke support organisation Cerebrum, Czech Republic, who will be sharing their experiences of developing support for informal carers.
Book your free place now at bit.ly/3xucXqx
Chair of the European Life After Stroke Forum Scientific Committee, Professor Avril Drummond, highlights the lack of emphasis on improving life after stroke for survivors and how this must be addressed.
‘ the needs of stroke survivors and their families….has not previously been given the focus it deserves’
‘few opportunities exist….in this neglected but vital area of care’
The European Life After Stroke Forum series of webinars in 2021 aims to build the life after stroke healthcare, research and patient community, stimulate debate and ultimately improve life after stroke care and build interest for our 1st European Life After Stroke Forum on 11 March 2022. To book your place on the next free webinar on Caring for the caregiver go to https://bit.ly/3xucXqx
Download the pdf here
For more information on the European Life After Stroke webinars go to https://www.elasf.org/