Heart Failure Policy Summit – 16 to 18 November 

Heart Failure Policy Summit – 16 to 18 November 

The inauguralHeart Failure Policy Summit, takes place from 16 to 18 November 2021.

The free, online summit will bring together patient advocates, healthcare professionals, clinical leaders, policymakers and other key figures in system transformation.

It aims to empower heart failure leaders and advocates to take action and engage decision-makers in their respective countries. 

To register click here  

Take action on World Stroke Day 29 October.

Take action on World Stroke Day 29 October.

On World Stroke Day, the World Stroke Organisation is organising several events you might want to be involved in.

It isn’t too late to register for the WSO congress 28-29 October. Arlene Wilkie, our Director General, will be speaking on the 28th. Register: here

Join the World Stroke Day panel discussion at 3pm CET: No time to waste! Saving lives and reducing disability by accelerating worldwide access to acute stroke treatment.

Every minute from the onset of stroke to treatment contributes to a loss of brain function and increases the probability of long-term impairment, disability and death. For governments, every year that goes by without action ramps up the social and economic impact of stroke.

Improving outcomes requires effort on all front but improvements are possible, even in the most challenging circumstances. This event will bring together leaders from patient, policy and industry to discuss opportunities and challenges to save #Precioustime and deliver access to quality stroke care for all.

With panel moderator Rageh Omaar, ITV Global Health Correspondent, stroke survivor and Gold Medal Olympian, Michael Johnson and Sheila Martins World Stroke Organization President-elect, World Stroke Campaign and WHO, NCD expert Slim Slama.

Register here

Save #Precioustime

Support the global drive on World Stroke Day in to raising awareness of stroke symptoms and the importance of saving #Precioustime.

Create Your Personal World Stroke Day Message with the social media post builder.

Share this video to help promote the message that acting FAST is important as minutes can save lives

Minutes Save Lives – know the signs, say its a stroke and save #Precioustime

Angels Initiative supports World Stroke Day

Angels Initiative supports World Stroke Day

SAFE and the Angels Initiative support World Stroke Day on 29 October. We recognise the importance of learning the symptoms of stroke and the importance of urgent access to appropriate medical care as minutes can save lives.

The Angels Initiative supports the provision of patient information to help patients, their families and carers understand their condition, be more actively involved in their treatment decisions and learn more about the important next steps to recovery.  The materials are available in 15 languages and can be found at www.safestroke.eu/safe-angels-initiative/

The Angels Initiative is a non-commercial healthcare project dedicated to improving stroke patients’ chance of survival and living a disability-free life. The Initiative has enabled multi-disciplinary stroke teams around the world to access education, standardisation tools, consultancy, community and quality monitoring processes that enable them to act faster to minimise the burden of stroke on patients’ lives.

More information about the Save #PreciousTime campaign on World Stroke Day visit www.world-stroke.org/world-stroke-day-campaign

World Stroke Day: Join the lecture: Challenges and opportunities in stroke care and research, 17.00 CEST

World Stroke Day: Join the lecture: Challenges and opportunities in stroke care and research, 17.00 CEST

Professor Martin Dichgans, Director at the Institute of Stroke and Dementia in Munich, will explain the recent challenges and opportunities in stroke research and care. It is aimed at a non-scientific audience.

This event is organised by ERA-Net and the Network of European funding for neuroscience research (NEURON).

Please register here: register.gotowebinar.com/register/6685780981947601424

World Stroke Day: EU training webinar: Stroke prevention & Life after stroke, during the Pandemic”. 

World Stroke Day: EU training webinar: Stroke prevention & Life after stroke, during the Pandemic”. 

You are invited to an EU training webinar on 29 October 2021 from 11.00 to 13.00 CEST, entitled Stroke prevention & Life after stroke, during the Pandemic”. 

To register click here.

The event is realized in the framework of the project EU PAGs & citizens together in the fight against stroke in the occasion of the World Stroke Day:  we will talk about stroke prevention, and life after stroke, with concrete examples of activities and tools that can improve the lives of patients and caregivers. 

The main objective is to provide an overview in order to know how to recognize and share the official sources of information to identify, recognize, and combat the main risk factors (pre-stroke) and to be aware of patients’ rights (pre and after a stroke); to discuss and address the main challenges faced during the COVID-19 pandemic to prevent and to live after a stroke; to be better equipped to protect rights and promote policies, at EU and local level.

Arlene Wilkie, our Director General, will be presenting at the meeting. Please join her click here.

Stroke Action Plan for Europe (SAP-E) Implementing together Stroke Care in Europe

Stroke Action Plan for Europe (SAP-E) Implementing together Stroke Care in Europe

It is our pleasure to invite you to the first SAP-E webinar, organised by the Steering Committee of the Stroke Action Plan for Europe 2018 – 2030. The webinar will provide a comprehensive overview of the project and its implementation progress.

The Stroke Action Plan for Europe (SAP-E) is a pan-European project, and sets targets for the implementation of evidence-based preventive actions and stroke services until 2030. It was outlined by the European Stroke Organisation (ESO) in cooperation with the Stroke Alliance for Europe (SAFE) to reduce the burden of stroke through improvement of care. SAP-E covers the entire chain of stroke care and was designed by a large group of stroke experts from all regions of Europe.

The event will be held online on Tuesday, 19 October from 14:00 – 15:00 CEST.

Six international speakers, some of them in their function as members of the SAP-E Steering Committee, will give you an introduction to the largest stroke project ever undertaken in Europe. For full programme details, please click here.

For participation, please register until 17 October 2021 by clicking here.

Join us on 14 October at the event on  AFib-related and CVD-related stroke

Join us on 14 October at the event on  AFib-related and CVD-related stroke

Building resilience against future health crises 

SAFE Director, Arlene Wilkie contributes to a critical thinking article for Friends of Europe which highlights the cardiovascular disease (CVD) community, including stroke patients, has been disproportionately impacted throughout the COVID-19 crisis. 

Read the full article here 

Join us on 14 October where Arlene will be speaking at the event on  AFib-Related and CVD-Related Stroke: Public Policy Recommendations for a Changing Environment at 3pm CEST, 14 October.

To register, go to https://bit.ly/2ZI3obt 

 Speakers:  

  • Birgit Beger, CEO, European Heart Network 
    Dr Michael Brainin, Past President, World Stroke Organization 
    Dr Valeria Caso, Stroke Neurologist & Associate Professor, University of Perugia Stroke Unit 
    Trudie Lobban, Founder & CEO, Atrial Fibrillation Association 
    Andrea Vassalotti, Director of Partnerships and Programmes, World Heart Federation 
    Arlene Wilkie, Director General, Stroke Alliance for Europe (SAFE) 
    Sirpa Pietikäinen, Member of the European Parliament (EPP, FI)

  • Moderated by Brian Maguire 

5 ways you can support the #Precioustime campaign this World Stroke Day

5 ways you can support the #Precioustime campaign this World Stroke Day

World Stroke Day is just two weeks away and WSO has been working hard to make sure that all of our members, stakeholders and supporters have the resources they need to activate the campaign in their community. Here are five key actions you can take to support the global campaign and drive home the message that when it comes to stroke minutes can save lives.

1 Use the toolkit

The World Stroke Day campaign toolkit has now been fully translated and ‘off the shelf resources’ including stroke symptom animations in Arabic, Chinese, English, Hindi, French, German, Portuguese (European and Brazilian), Russian and Spanish (European and Latin American) are available to support your campaign activation and engagement.

From e-mail signature footers, social media profile images, to stroke symptom animations for Instagram, these are great resources that can be used to share the global message while highlighting key issues in your community.  Please be sure to use the #Precioustime (or the translation provided in the toolkit) so we can monitor, spot, share and reflect your contribution in our World Stroke Day impact report.

2 Share the campaign video

The World Stroke Day video ‘Minutes save lives’ premiered on our social channels on Friday 1st Oct.  As well as beautiful images and a strong emotional narrative, the video incorporates an animation graphic  highlighting key stroke symptoms translated into campaign languages, You can find this content in our members Dropbox translated closed captions can be selected by users for spoken text. Video content is the most successful format for social media, we would encourage all of our members and stakeholders to share the campaign videos through your networks and share on your social media channels around World Stroke Day. Other ‘offline’ video sharing ideas include streaming the video onto public screens in hospitals, community venues, bus and railways stations, shopping and community centres.

3 Put your activity on the map

Our Global Map of Action shares details of the activities and events that our partners and the stroke community are planning to raise awareness of stroke on and around October 29th. Make sure you your register your action – no matter how big or small. This is an important measure for us in terms of campaign community engagement and helps us to show a world united and determined to tackle stroke.

4 Prepare and share a personal message

Personal messages on corporate and individual social media channels are a great way to help broaden the reach and raise awareness. We have created a simple to use, interactive social media and poster building tool on our website to help you prepare a World Stroke Day message. The tool supports messages in Arabic, Chinese, English, Hindi, French, German, Portuguese Russian or Spanish.

5 Light it up in blue

To highlight the importance of #Precioustime when it comes to stroke, a number of our members will be lighting up landmark clocks in indigo blue – the agreed awareness colour for stroke. Let us know if you have managed to achieve this in your community and be sure to share photos with the campaign hashtag.

One more day to go!

One more day to go!

Our Life after stroke webinar – Caring for the caregiver – is tomorrow (29 September)!

We are hoping you will join us tomorrow along with Jana Dobrkovská from stroke support organisation Cerebrum in the Czech Republic, Professor Carlo Semenza (Italy) and Dr Carla Pereira (Portugal) to discuss the importance of looking after those who are the caregivers of stroke survivors.

You can find out more about the programme at here

Book your free place at here