Survey for people living with stroke and their carers

Survey for people living with stroke and their carers

The European Federation of Neurological Associations has launched a survey, Assessing diagnosis and care pathways of people living with neurological disorders in Europe.

The survey aims to identify the challenges faced by all affected by neurological conditions, including stroke.

The survey is open to anyone 18+, living with a neurological disorder, or their carers.

It is available in eight languages (English, French, German, Italian, Spanish, Portuguese, Polish and Romanian).

Data generated through this survey can be used to address the unmet needs and challenges faced by all affected by neurological conditions, including stroke.

Deadline for completing the survey is 19 April 2022.

Arlene Wilkie highlights the importance of Life After Stroke

Arlene Wilkie highlights the importance of Life After Stroke

There are more than nine million people living with stroke in Europe.

The number of people living with stroke is set to increase as our population ages.

Life after stroke is a key component of the stroke care pathway. It needs to be made a priority and improved across Europe.

Check out this short video by Arlene Wilkie, Director General of SAFE, to know more about the importance of life after stroke.

Find out about our European Life After Stroke Series and the Stroke Action Plan for Europe

European Life After Stroke Series – next event date announced

European Life After Stroke Series – next event date announced

The next event in the European Life After Stroke series will be on Wednesday 9 November.

More details on the programme and speakers will be announced later in the year.

Our last event on 11 March 2022, covered the topics of Self-management after stroke and communication after stroke:

That seminar was uplifting, inspirational, and so well delivered. A huge amount of work to get this show on the road – and it was brilliant. Lots of ideas, take home messages and further reading. 11 March event participant

The event will be available to view on-demand early next month. You can catch up on the events held last year at www.elasf.org

 

Statement from our President, Hariklia Proios on Ukraine

Statement from our President, Hariklia Proios on Ukraine

On Friday 11 March, we held our Life After Stroke event. Our thoughts were with all of those in the Ukraine, and the atrocious loss of life and suffering they are facing

Each day this war continues, means a more dreadful place for those living with stroke and their families.

We deplore this war and the impact it is having on the provision of vital stroke services, care and support.

Many hospitals have been damaged or destroyed. Medical and allied healthcare professionals are desperately struggling to save the lives of, and care for those who have had a stroke. Healthcare professionals themselves are being caught up in the attacks on civilians. Patient organisations are unable to provide the full support that stroke survivors desperately need.

Those who are living with stroke, whether still in Ukraine or fleeing the country, are suffering from a lack of available medicine, care and support.

This situation is unthinkable in the 21st century.

We are calling for the international community to support Ukraine and the surrounding countries to urgently restore continuity to stroke care.

We must see an immediate end to this war.

SAFE supports Brain Awareness Week 14 – 20 March

SAFE supports Brain Awareness Week 14 – 20 March

This awareness week is a global campaign to engage the general public in brain science, and the impact brain research has on our everyday lives.

During Brain Awareness Week, we will be focussing on the importance of stroke research.

We will highlight the latest news from our EU research partners:

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‘Stroke research is so important in helping us reduce deaths from stroke and improve the health and wellbeing of stroke survivors.

That is why it is so important for us to support this EU research and promote the potential impact it can have on the stroke patient.’

Arlene Wilkie, Director General, Stroke Alliance for Europe

Life After Stroke event puts a spotlight on stroke survivors

Life After Stroke event puts a spotlight on stroke survivors

We are delighted that stroke survivors are taking the stage at our Life After Stroke event this Friday, 11 March 2022.

Stroke survivors Mina Michalatou, Greece, Jürg Schwyter, Switzerland, Scott Ballard-Ridley, England, and Alexia Kountouri, Cyprus, will share their experiences of overcoming communication barriers after stroke.

Find out more information about the full programme and book your free place.

The European Life After Stroke Forum Series event has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®).

 

 

 

 

 

Stroke Action Plan for Europe Factsheet published

Stroke Action Plan for Europe Factsheet published

With the European Stroke Organisation, we have now published a Factsheet on the Stroke Action Plan for Europe 2018-2030.

This summary will help more people understand the basic tenets of the Stroke Action Plan for Europe and how the Plan aims to improve stroke care across the seven domains of the stroke care pathway.

You can download the Factsheet and find out more information at https://actionplan.eso-stroke.org/

Survey for people living with stroke and their carers

Survey launched to mark International Women’s Day

Today is International Women’s Day. To coincide with this, the European Federation of Neurological Associations has launched a survey, Assessing diagnosis and care pathways of people living with neurological disorders in Europe.

Despite higher prevalence among women of many neurological disorders gender stereotypes can lead to underdiagnosis and delayed treatment.

The survey aims to help identify the challenges facing all affected by neurological conditions, including stroke.

The survey is open to anyone 18+, living with a neurological disorder, or their carers and is available in eight languages (English, French, German, Italian, Spanish, Portuguese, Polish and Romanian).