We are pleased to announce that we will be holding our first face-to-face conference on Life After Stroke on 10 March 2023 in Barcelona.
The European Life After Stroke Forum was created to bring together researchers, scientists, medical professionals, health policymakers, advocacy, or support groups, stroke survivors and their carers to share knowledge and network.
Due to COVID-19, our original planned conference had to be postponed. In its place we held a series of successful Life After Stroke Series of webinars in 2021 / 2022 to maintain moment and interest in this very important area of life after stroke.
‘There are few opportunities regarding conferences, workshops, and shared networking events for advocates and researchers in the life after stroke area of care. Also, there is limited evidence and research data in longer term management and care and stroke survivors often feel abandoned after rehabilitation stops. This conference with stimulate debate and ultimately improve life after stroke.’
Avril Drummond, Chair, European Life After Stroke Forum
How to register, more details about the programme and how to submit abstracts will be available from 10 November.
Sign up to our enewsletter and find out more about the European Life After Stroke Forum at www.elasf.org
Feedback from our Life After Stroke Series 2021/ 2022 online events
‘Thank you @StrokeEurope for organising such a great event. A morning of interesting insights into stroke care and the additional challenges caused by Covid. A particular highlight was the incredibly inspirational talk from Alexia about her lived experience.’
‘Thank you to all the speakers – such a valuable webinar. Really useful for my work with people living with stroke.’
‘These webinars are really useful and informative for everyone from stroke expert to stroke survivor, family or caregiver, and even after this webinar ends, it will be a good online content for sharing.’
‘Congrats to SAFE TEAM for organising this excellent webinar.’
‘Thank you for the excellent presentations including stroke survivor’s stories/experiences. I will definitely be aiming to embed some of these thoughts into my practise to empower my patients to be equipped for self-management of their condition in order to give them quality of life as stroke survivors.’
‘Thank you so much for such an interesting presentation – it was particularly interesting to hear from ‘expert witnesses’ and real-life experience of challenges and coping strategies.’
The European Medicines Agency (EMA) Patients’ and Consumers’ (PCWP) Healthcare Professionals’ (HCPWP) Working Parties are conducting an important survey on medicine shortages.
The purpose of this survey is to gather insight into awareness of the EU guidance on shortage prevention and feedback on the implementation plans as well as the shortage catalogues and communication to the public.
Complete this 5-minute survey on availability of medicines by Monday,31 October.
Juliet Bouverie (England) will be chairing this important session on physical activity.
We know that it is important that stroke survivors are active. This session will include a summary of the evidence base for physical activity after stroke, how therapists support stroke survivors to get and stay physically active. A stroke survivor will share their experiences and motivation to move more.
Juliet will be joined by:
- Craig Pankhurst (UK)
- Mari Gunnes (Norway)
- Sarah Moore (UK)
- Grethe Lunde (Norway)
The session will help to bust some common myths about physical activity and stroke, including that it is not all about sweat and lycra!
‘We should continue to develop personalised approaches that can support and empower stroke survivors to make physical activity a part of their everyday lives in the long-term.’
Mari Gunnes, Norway
We are currently seeking accreditation for this event from the European Accreditation Council for Continuing Medical Education.
Book your free place at https://bit.ly/3pbggjE
The European Stroke Organisation (ESO) is looking for support for the Stroke Action Plan for Europe (SAP-E) by incorporating the role of Chief Operations Officer (COO) in the leadership structure of the Steering Committee.
SAP-E is a key project that we run in partnership with ESO. It was designed by a group of stroke experts from across Europe and covers the whole stroke care pathway and sets targets for the implementation of evidence-based preventive actions and stroke services until 2030. It’s ultimate goal is to reduce the burden of stroke through the improvement of care at the national and European levels.
ESO is looking for a motivated early mid-career, academic stroke care professional who is interested in actively shaping the future of how stroke is perceived and treated within Europe. They will contribute to the success of SAP-E by supporting and driving implementation of the Stroke Action Plan in respective regional countries.
The deadline for applications is 14 November 2022.
For more information https://actionplan.eso-stroke.org/wp-content/uploads/2022/10/SAP-E_Call-for-Chief-Operations-Officer_2023_final.pdf
Professor Avril Drummond (England) will be chairing the session on Fatigue after stroke – what can we do? at our European Life After Stroke series event on 9 November.
Fatigue after stroke is common and debilitating. Yet there are many unanswered questions about fatigue and how best to manage it.
Stroke survivors often say doctors do not talk to them about fatigue and many only learn much later that it is a symptom of stroke. This session will provide an overview of the topic and the important issues for both clinicians and stroke survivors.
Avril will be joined by speakers:
- Ruth Miller, stroke survivor (England)
- Gillian Mead, clinical academic (Scotland)
- Anners Lerdal, clinical researcher (Norway)
Book your Free place now https://bit.ly/3QjkotW
To find out, join Arlene Wilkie, Director General SAFE; Valeria Caso, former ESO President; and others at the policy roundtable Driving the EU’s Non-Communicable Disease Initiative: sharing best practices and empowering equal access to stroke prevention and care on 12 October, 15.00 – 16.30 CET.
You will be able to join via Zoom. The webcast will be available in English and will be translated into French and Spanish.
Find out more at http://agenda.euractiv.com/events/driving-eu-s-non-communicable-disease-initiative-sharing-best-practices-and-empowering-equal
To find out about the Stroke Action Plan for Europe check https://actionplan.eso-stroke.org/
Dr Carina Persson (Sweden) will be chairing this session on going back to work after a stroke.
This important goal may seem impossible, yet a return to professional work is possible. This session provides practical help on doing this.
Carina’s session will include an interview with stroke survivor Anders Andersson (Sweden), a presentation from Professor of Rehabilitation Research, Kate Radford (England) and an interview with Katharina Stibrant Sunnerhagen, Professor of Rehabilitation Medicine (Sweden), followed by a live panel discussion.
Join us and you will learn from the latest research and a stroke survivor´s experiences.’
Carina Persson, Life After Stroke Series Session 1 Chair
Book your FREE place https://bit.ly/3daJuMQ
We have three plenary sessions for our next life after stroke series that feature key issues faced by people living with stroke.
Each will focus on the real-life experiences of people living with stroke on:
- getting back to work
- coping with fatigue and
- getting active post stroke.
At the going back to work after a stroke, we will discuss how this is an important goal for many but may seem impossible. Yet, a return to professional work is possible.
Speaker, Anders Andersson, stroke survivor, board member, first vice chairman Stroke Foundation, Göteborg, Sweden, will be sharing his experiences.
At the age of 30, I suffered a stroke. In this webinar, I am sharing some of my experiences of getting back to work after my stroke.’ Anders, stroke survivor
Book your FREE place for all three sessions on 9 November 10.00 – 15.00 CET at https://bit.ly/3BSVPQc
Thank you for the excellent presentations including stroke survivor’s stories/experiences. I will definitely be aiming to embed some of these thoughts into my practise to empower my patients to be equipped for self-management of their condition in order to give them quality of life as stroke survivors.’ Delegate, self-management session, Life After Stroke Series, March 2022
Thank you so much for such an interesting presentation – it was particularly interesting to hear from ‘expert witnesses’ and real- life experience of challenges and coping strategies.’ Participant, everyday communications after stroke session, Life After Stroke Series, March 2022
For more information about the series and to watch previous sessions on demand, visit www.elasf.org
The ANGIE Kick-start Programme, an initiative from the ANGIE project, invites researchers, clinicians, professionals, students and entrepreneurs with an interest in personalised and precision medicine to develop new therapies based on its technology platform.
ANGIE Kick-start is a pre-commercial adoption programme running from October 2022 to May 2023 that will allow you to start innovating with the technology developed in the ANGIE project.
The programme consists of a series of workshops on targeted drug delivery and entrepreneurship topics to help you develop your idea for a novel therapy. All participants will be mentored by an experienced venture builder, have access to leading experts in the field, and receive support to start a research project or a new venture.
Participation is free, and registration is still open!
To learn more about the programme and how to participate, please visit: https://h2020-angie.eu/innovation-ecosystem/
The latest opportunity from the NCD Alliance’s Our Views Our Voices Initiative: the expression of interest for series four of the NCD Diaries is now live and can be found HERE. The theme for this series is NCD prevention through the lived experience lens and the deadline for interest is 27 September.
The NCD Diaries is a global, multimedia storytelling project, and for this series advocates will have the opportunity to shed light on their lived experience of NCD prevention, including how certain prevention strategies, or lack thereof, have shaped their NCD journey. Series 4 will take place from October to December 2022. Please read the Criteria and Selection Process for more details before applying. Please submit your Expression of Interest by September 27th 2022 by 12pm GMT. The Expression of Interest form is only open to people with life experiences affiliated with or involved with members of the NCD Alliance, including national and regional NCD alliances.