The World Health Organization (WHO) is holding a consultation with people living with non-communicable diseases and mental health conditions on the 18 and 19 May (09:00 – 12:00 CEST).
WHO is developing a Framework for Meaningful Engagement, which includes those living with stroke. The aim is to involve them in co-designing policies, programmes and principles.
The consultation will include a mixture of presentations, discussions and breakout sessions. They will be co-led and facilitated by those with lived experience.
Sign up here https://www.surveymonkey.com/r/livedexperienceEUROen
It is International Clinical Trials Day this Friday – the European Centre for Clinical Research Training has organised a free webinar on 20 May on International Clinical Trials Day.
During this free online session, patients will share their journey in a clinical study. This will be an excellent opportunity for other patients to learn the benefits of clinical research.
To register click here.
On European Stroke Awareness Day (Tuesday 10 May) we raise awareness of one of 10 key modifiable risk factors of stroke – high blood pressure.
According to recent statistics from Eurostat (European Commission research), 1 in 5 Europeans have high blood pressure.
The highest levels of high blood pressure were recorded in Croatia (37% of people), Latvia and Hungary (both 32%).
In contrast, the lowest shares were recorded in Ireland (12%), Luxembourg, Romania and the Netherlands (all 16%).
Our Vice President Professor Anita Arsovska said:
The majority of strokes can be prevented by changing lifestyle and behaviours. Our stroke prevention website https://strokeprevention.info/ has been updated with all the latest facts and information to help people reduce their risk of stroke. It is available in six languages (English, French, Polish, Portuguese, Russian, Spanish).
Stroke prevention is a target outlined in the Stroke Action Plan for Europe. National stroke plans need to include stroke prevention and public health interventions to promote healthy lifestyles.
Find out more
On European Stroke Awareness Day, we highlight the critical work of the Stroke Action Plan for Europe (SAP-E) and the achievements to date, bringing us closer to improving stroke care across Europe
Arlene Wilkie, SAFE Director General and SAP-E implementation Co-Chair says:
Stroke is one of the biggest causes of adult disability in Europe 2018-2030 which impacts on all aspects of life – economic, social, medical, physical and mental health.
Together with European Stroke Organisation we have developed a number of documents and tools to improve stroke care in Europe which are being used by the SAP-E national co-coordinators to implement the SAP-E in their country.
Our aim for the SAP-E is to ensure that each European country has a national stroke plan, from prevention to life after stroke, that is implemented, funded and reviewed. We have achieved a lot so far since 2018, we have a long way to go and we are committed to implementing the SAP-E to ensure that we improvements in stroke treatment and care across Europe.
For more information visit https://actionplan.eso-stroke.org/highlighting-sap-e-successes-on-european-stroke-awareness-day/
We congratulate the Slovakian Stroke Action Plan for Europe National Coordinators for the signing of the Declaration by the Slovakian Ministry of Health.
They join Ukraine, Lithuania, Portugal, Catalonia, Bulgaria, Kosovo and Croatia.
Each Declaration signed is an important step in the implementation of the Stroke Action Plan for Europe and improving stroke care.
For more updates visit http://actionplan.esp-stroke.org
Interested in individual patient advocacy, starting an organisation or enhancing an already successful patient group?
If so, you will find something of value at the next Global Heart Hub patient advocacy session on Wednesday 11 May at 17.00 – 18.00 CET.
Jon Barrick, past SAFE President, will share his knowledge and experiences at the free event.
Register free here to learn how you can use Jon’s experience for your own patient advocacy.
The European Centre for Clinical Research Training has organised a free webinar on 20 May on International Clinical Trials Day.
During this free online session, patients will share their journey in a clinical study.
This will be an excellent opportunity for other patients to learn the benefits of clinical research.
To register click here.
Congratulations to Croatia on their latest achievement in supporting the Stroke Action Plan for Europe.
The signing of the Declaration by the Croatian Ministry of Health is an important step toward improving stroke care for a unified approach to stroke treatment across Europe.
The annual European Stroke Organisation Conference, 4-6 May 2022, Lyon, France will offer the best in stroke science and practice.
The programme includes results of large clinical trials, new science and knowledge emerging from the laboratory as well as optimal ways to implement best practice in stroke. The Conference is the place for science, exchange, education and collaboration.
If you cannot make Lyon, the Conference will be in a hybrid digital format which will enable all registrants to follow the sessions via live-stream and to watch them again, on demand, for up to three months after.
The Brain Innovation Days will be held on 11 – 12 October 2022 in Brussels, Belgium.
The event will centre around Connecting Brains: bringing together the current and future generations of brain research and innovation.
Key players and experts in the brain space across Europe will be able to connect through a networking-friendly programme and innovation showcasing.