How much does a stroke cost? SAFE is initiating a research project in 33 European countries

How much does a stroke cost? SAFE is initiating a research project in 33 European countries

Burden of Stroke Report, 2017

The Stroke Alliance for Europe, as the largest pan-European organisation of stroke patient support organisations and the European Stroke Organisation, the largest European organisation of stroke professionals have increasingly been working together and are committed to sharing expertise and best practice to ensure the best outcomes for stroke patients.

Together we are currently developing the revised Stroke Action Plan for Europe which will be launched in May 2018. SAFE will follow this with the results of our next key piece of commissioned research, the Economic Impact of Stroke in Europe.

The primary goal of this study by a health economics team from the University of Oxford is to increase the priority given to stroke and to reinforce and underpin the influencing of European and country-level policy work already underway as a result of the Burden of Stroke Report. (more…)

EU funded project SVDs@target investigates small vessels in the brain to understand more about the underlying pathologies of stroke and dementia

EU funded project SVDs@target investigates small vessels in the brain to understand more about the underlying pathologies of stroke and dementia

Anna Kopczak, MD, study physician & neurologist in SVDs@Target project

Stroke and dementia rank among the most pressing health issues in Europe. Cerebral small vessel diseases (SVDs) have emerged as a central link between these two major co-morbidities. SVDs account for more than 30% of strokes and at least 40% of dementia cases.

They encounter multiple distinct diseases that can be separated based on their underlying genetic defects, risk factors, and clinical presentations. Despite this profound impact on human health, there are no treatments with proven efficacy against SVDs.

SAFE was glad  to have a talk with Anna Kopczak, MD, study physician & neurologist from the Institute for Stroke and Dementia Research (ISD) at Klinikum der Universität München, Munich, Germany. (more…)

Invitation to participate in a Stroke Association webinar on peer support

Invitation to participate in a Stroke Association webinar on peer support

Stroke clubs and groups provide essential long-term peer support to stroke survivors, carers, family and friends. They provide an opportunity for those who have been affected by stroke to rediscover previous skills, learn new skills, regain confidence, increase independence and socialise with other individuals who have had similar experiences.

Stroke Association has received funding for our Hand in Hand peer support programme. This is an ambitious, five-year project enabling us to scale our experience, expertise and knowledge of peer support for the benefit of local stroke communities.

As part of this programme, we would like to share some of our experience, expertise and knowledge of peer support with other SAFE members, and to hear about your experiences and insights in delivering peer support. We will hold a webinar on Monday 26th March 2018, 11am BST, 12pm CET (more…)

TENSION: Could more patients benefit from thrombectomy?

TENSION: Could more patients benefit from thrombectomy?

TENSION: A new international study funded by EU, hoping to extend the benefits of mechanical thrombectomy

A large new international study hoping to extend the benefits of mechanical thrombectomy has been launched. Thrombectomy is a treatment for certain types of acute ischaemic stroke that can use mechanical devices to drastically reduce the effects of an ongoing stroke. Very small devices are used to break and remove the clot from the blood vessel in the brain. This procedure is carried out by highly skilled neuro-radiologists and requires special hospital facilities. (more…)

How much does a stroke cost? SAFE is initiating a research project in 33 European countries

Scientific meeting about Angels Initiative held in Macedonia

Angels Initiative builds a global community of stroke centers and stroke ready hospitals, working each day to improve the quality of treatment for each patient with stroke.

Written by Prof. Dr Anita Arsovska and Dr Maja Bozhinovska-Smicheska

26.02.2018, Skopje, R. Macedonia– Association for a fight against stroke ,,Stroke” Macedonia in collaboration with University Clinic of Neurology organized a scientific meeting ,,Angels Initiative in Macedonia – next steps” on Friday, 23rd February. Meeting was attended by 50 medical specialists from all over Macedonia. (more…)

Action Plan for Stroke in Europe 2018-2030: The draft document now open for comments

Action Plan for Stroke in Europe 2018-2030: The draft document now open for comments

On behalf of the Action Plan Steering Committee, we cordially invite you to contribute with your valuable comments & input on the Action Plan for Stroke in Europe Document.

Please click here to comment on the seven domains and the translational research priorities. The platform is opened until 11 March 2018.

Please click here to follow the instruction on google Drive for commenting.

We would like to encourage as many people as possible to get involved and help SAFE and ESO in shaping up recommendations for stroke prevention, treatment and rehabilitation from 2018 to 2035.

(more…)

How much does a stroke cost? SAFE is initiating a research project in 33 European countries

Brain liquefaction after stroke is toxic to surviving brain

First published on ScienceDaily

Scientists have known for years that the brain liquefies after a stroke. If cut off from blood and oxygen for a long enough period, a portion of the brain will die, slowly morphing from a hard, rubbery substance into liquid goop.

Now, researchers at the University of Arizona College of Medicine — Tucson have discovered that this liquefied, dying brain tissue is toxic — and can slowly leak into the remaining healthy portion of the brain, potentially causing harm. The new findings may open the door for developing new treatments to ward off dementia after stroke; they are described in the April 2018 issue of Neurobiology of Disease. (more…)

How much does a stroke cost? SAFE is initiating a research project in 33 European countries

MRI stroke data set released: Brain scans from stroke patients are being downloaded by researchers to test algorithms

First published on ScienceDaily

Brain scans from stroke patients are being downloaded by researchers around the world to test algorithms that can process MRI images

A USC-led team has now compiled, archived and shared one of the largest open-source data sets of brain scans from stroke patients via a study published Feb. 20 in Scientific Data, a Nature journal.

The data set, known as Anatomical Tracings of Lesion After Stroke (ATLAS), is now available for download; researchers around the world are already using the scans to develop and test algorithms that can automatically process MRI images from stroke patients. In the long run, scientists hope to identify biological markers that forecast which patients will respond to various rehabilitation therapies and personalize treatment plans accordingly. (more…)

How much does a stroke cost? SAFE is initiating a research project in 33 European countries

Stroke drug demonstrates safety in clinical trial

First published on ScienceDaily

A preliminary Phase 2 clinical trial has demonstrated that patients with acute ischemic stroke, the most common type of stroke, can safely tolerate high doses of 3K3A-APC, a promising anti-stroke drug invented at The Scripps Research Institute (TSRI). The trial results, announced by pharmaceutical company ZZ Biotech, also show that 3K3A-APC substantially reduced hemorrhage volume and hemorrhage incidence in patients.

“These results lay the groundwork for the next steps toward FDA approval,” says John Griffin, PhD, professor at TSRI, whose team invented 3K3A-APC. (more…)

The first Slovenian Stroke Club Forum in 2018

The first Slovenian Stroke Club Forum in 2018

Written by Jelka Janša, Slovenian Stroke Support Organisation

On February 12 -13, 2018 the Slovenian Stroke Club Forum took place at the Topolšica Thermal Spa. The first Slovenian forum was launched in the late 90-ties, followed by the positive examples from the Stroke association in the United Kingdom. In Slovenia, since then, each year there will be between two to four forums organised, depending on the content, size and amount of activities within the organisation. After forum being convened by the president of the Slovenian Stroke Support Organisation, a special chair is appointed for each forum.

Forum consist of the presidents from the local stroke clubs and board members. Forum itself supports the operational activities of the organisation, discusses immediate and future plans, liaise clubs’ activities with relevant local institutions and local associations, covers communication with local media, enables local fundraising, supports visits among the clubs. Usually, as an add-on, there would also be a professional lecture on a topic of interest to the forum. This time the topic was the Burden of stroke among stroke survivors and their relatives in Slovenia.

The first Stroke Club Forum in 2018 was convened by Mr. Milan Čuček, the president and Mrs. Tatjana Erjavec, the vice-president of the Slovenian Stroke Support Organisation. The participants, presidents from local clubs and some board members, were discussing and analyzing activities in 2017, and annual and long term plans of the Organisation. Immediate action plans have been targeted toward improvement of the ongoing monthly clubs’ meeting. Further they were exploring ways to increase membership and expanding fundraising capabilities. In addition, there are two activities planned for May 2018; organized events to mark the European Stroke day and promotion of »The Stroke Action Plan«document in Slovenia.
Overall, forum was dynamic, stimulating and allowed plenty of constructive discussion.

 

Slovenian Stroke Club Forum, photo by Združenje bolnikov s cerebrovaskularno boleznijo