Brussels, 16 April 2018- The eLearning Module 1 of the Stroke Support Organisation Faculty Tool (SSOFT) is published today at the following address

SSOFT’s first module focuses on the principles around developing and growing SSOs, and is delivered in five sub-modules:

1.1 – What is a Stroke Support Organisation?
1.2 – What is the role of a Stroke Support Organisation?
1.3 – How do you set up a Stroke Support Organisation?
1.4 – Growing your Stroke Support Organisation
1.5 – Stroke Support Organisation networking

The module provides learners with a wealth of knowledge and includes videos, interactive content and activities. Learners will be able to work through the sub-modules at their own pace, earn rewards and share their progress on social media.

“This is a great achievement which has been made possible through working with subject matter experts, professional service providers and SAFE’s membership who have fed into this project at many levels.” Victoria Brewer, Project and Operations Director, SAFE.

Stroke Support Organisations have been at the heart of this tool; for newer or smaller organisations, the information in the tool will provide knowledge that will help them to build and grow. For larger organisations SSOFT will enable them to support their communities and other stroke professionals across Europe. To grow their communities and add more voices to their movement/arguments for change.
This tool is also for anyone who is interested in knowing more about what an SSO is, how to start and develop one and how to make it sustainable.
For those interested in using this innovative eLearning platform we would encourage them to visit the SSOFT website


SSOFT is an innovative online eLearning advocacy tool being developed by Stroke Alliance for Europe (SAFE), in partnership with the European Stroke Organisation (ESO).
This online learning platform provides knowledge and training on how the creation of effective advocacy activities and campaigns to deliver positive change at a local and national level on stroke prevention, treatment and care. The eLearning platform will include six modules that provide information on:

Module 1: Stroke Support Organisations (SSOs)
Module 2: Making Change Happen
Module 3: Use of Evidence
Module 4: Role of Patient Voice
Module 5: Health System Advocacy
Module 6: Public Advocacy

The modules and learning environment is accessible via the SSOFT website through a simple registration process. Visitors to the website can also learn more about SSOFT, SAFE and ESO, find their nearest SAFE Stroke Support Organisation (SSO) as well as hear from SAFE members about their experiences.
For more information, please send an email or visit


SAFE would like to take this opportunity to thank and acknowledge the contributions made by those who have helped in the development of SSOFT and module 1.
Stroke Alliance for Europe Board, who have been involved at every stage of development of this module.

The Peer Reviewers for module 1:

⦁ Stiftung Deutsche Schlaganfall-Hilfe (Dr Markus Wagner)
⦁ Neeman Association for Stroke Survivors (Ms Sandra Levy and Ms Pnina Rosenzweig)
⦁ Stroke Association (Mr Anil Ranchod)
⦁ Macedonian Stroke Association (Dr Anita Arsovska)

Our members who have shared their experiences and knowledge in the video interviews used within the module:

⦁ Anita Arsovska – Macedonian Stroke Association
⦁ Hariklia Proios – Hellenic Alliance/Action for Stroke Support Organization, Greece.
⦁ Bjørn Magne Bakke – Norsk forening for slagrammede, Norway
⦁ Ove Puisto – STROKE-Riksförbundet, Sweden
⦁ Jelka Jensa – Združenje bolnikov s cerebrovaskularno boleznijo, Slovenia
⦁ Chris Macey – The Irish Heart Foundation, R.Ireland
⦁ Elli Ortinez – Fundació Ictus, Catalonia
⦁ Chatall Keller – Bletz asbl, Luxembourg

Our partner organisations who have collaborated in the development of the module content:

⦁ Strokeliga, Hungary.
⦁ Beyinder, Turkey.
⦁ Stroke Association, UK
⦁ World Stroke Organization
⦁ European Stroke Organisation.

The SSOFT Project Champions:

⦁ Bjørn Magne Bakke – Norsk forening for slagrammede, Norway
⦁ Ove Puisto – STROKE-Riksförbundet, Sweden
⦁ Diana Wong Ramos – AVC Portugal
⦁ André de Rosa Spierings – Hersen Letsel, Netherlands

And all those who participated in the User Acceptance Testing of module 1.
We would also like to thank the project sponsor Bayer Healthcare who have supported this project through an education grant.

About SAFE

The Stroke Alliance for Europe (SAFE) a non-profit-making organisation formed in 2004. It is the voice of stroke patients in Europe, representing a range of patient groups from 30 European countries.
SAFE’s goal is to decrease the number of strokes in Europe by advocating for better prevention, access to adequate treatment, post-stroke care and rehabilitation.