Dec 4, 2024
We warmly welcome the Council of the European Union’s conclusions on improving cardiovascular health, a critical step in addressing one of the most significant public health challenges in Europe. Cardiovascular disease, which includes stroke, is the leading cause of death in the EU, affecting millions of citizens and costing the economy billions annually.
This Council conclusion is important as is represents a collective agreement among EU Member States on key issues of concern and recommended actions. These can influence the work of Member States and the European Commission.
We commend the Council’s call for action, urging Member States to prioritise cardiovascular health. This includes expanding screening programs for risk factors, addressing social and environmental determinants of health and improving access to timely diagnosis, treatment and rehabilitation. These measures are vital for those at risk of stroke and for individuals already living with the consequences of stroke.
We now call on the European Commission and the Commissioner for Health to take decisive action by developing a new European Cardiovascular Health Plan supported with adequate resources. Such a plan would guide Member States in implementing the Council’s recommendations, from enhancing preventive care and early detection to advancing management and rehabilitation practices.
Arlene Wilkie, Director General of the Stroke Alliance for Europe, said: “These Council conclusions represent a vital step forward for the millions of people across Europe living with the effects of stroke and those at risk. Member States and the European Commission now have the mandate to prioritise cardiovascular health and transform lives. This would not only reduce the devastating burden of cardiovascular disease it would also improve the quality of life for millions of Europeans. Early intervention and improved care can prevent strokes, save lives and support survivors in their recovery, enabling them to live healthier, more active lives”.
“We look forward to working with policymakers, healthcare professionals and civil society to turn these ambitions into reality for all those at risk of stroke and those affected by stroke. Together, we can ensure that stroke and cardiovascular health becomes a priority across Europe, with a comprehensive plan to support both prevention and care”.
Notes:
We have been working in partnership with the European Alliance for Cardiovascular Health to raise awareness of stroke and to call for greater focus on cardiovascular health at the EU level. For the EACH statement on the Council conclusions please click here
The final Council conclusion can be found here.
Oct 21, 2018
At this year’s World Stroke Congress In Montreal, Canada, SAFE was present through a variety of activities, from chairing stroke support sessions, being one of the key speakers and presenters, having a very well noticed and visited information stand, to actively participating in the World Stroke Day workshop and shaping the World Stroke Campaign in the years to come.
SAFE President Jon Barrick presented the SSOFT project, an online ‘how to’ toolkit for a range of advocating skills training, from setting up a stroke support organisation to leading PR and advocacy campaigns. This tool aims to build capacity of the European SSOs but can be used much broader to increase one world voice for stroke. His presentation sparked interest even among SSOs from other continents leading to an interesting exchange of ideas and suggestions for its further development. The SSOFT project will be completed by end of November 2018. Project team are looking at the future development such as translation into other languages, additional modules, global scope, said Barrick, but it is depending on funding. The presentation was broadcasted live on Facebook and the video can be found here.
In addition to the SSOFT project, SAFE had a chance to present the economic Burden of Stroke Report, scheduled to be published towards the end of 2019, as well as the SAFE & Industry Partner collaboration project on Life With Spasticity.
However, the Stroke Action Plan for Europe 2018-2030, a joint SAFE and ESO project got the majority of attention due to the fact that it just has been launched in May this year and is aimed to set the road map for stroke prevention, treatment and life after stroke in Europe in the next 12 years.
Successful examples and case studies from around the world, such as the one of the Swedish Stroke Registry and their latest project about caregivers and how they are coping with the consequences of strokes in their loved ones. The need for comprehensive and systematic follow up reviews for stroke survivors, after 3, 6 and 12 months was particularly stressed out.
Prof. Bo Norrving
We heard from Prof. Bo Norrving, University of Lund, Sweden, that one of 6 strokes was eradicated in Sweden over the last 6 years, meaning 14,000 in absolute number of strokes, and saving one billion euros. The reason for this success lays in treatment of TIA, atrial fibrillation and use of preventive medications. Stroke is probably the single most preventable disease of all. It may be that I am wrong, but I would like to be proven to be wrong, said Prof. Norrving.
During a separate open session on stroke as part of the non-communicable disease, Stephanie Mohl on behalf of American Heart and Stroke Association opened the conversation saying: Here we are in 2018 and we still need to talk about why patients need to in center of the healthcare, pointing towards all of the necessary efforts to convince the policy decision makers to listen to the patient voice in almost all parts of the world.
The way non-communicable diseases were addressed so far by the policy makers, the NCD acronym might as well stand for No Can Do, said Jon Barrick. This needs to be changed, but we need to be aware that people don’t put energy into hopeless campaigns, so stroke support organisations should be more active in showing perspectives and opportunities for stroke survivors and their carers.
SAFE was active on social media during the whole three days of the World Stroke Congress. For more information, please visit our social media accounts on Facebook and Twitter.
An open session on stroke and non-communicable diseases
Feb 26, 2018
On behalf of the Action Plan Steering Committee, we cordially invite you to contribute with your valuable comments & input on the Action Plan for Stroke in Europe Document.
Please click here to comment on the seven domains and the translational research priorities. The platform is opened until 11 March 2018.
Please click here to follow the instruction on google Drive for commenting.
We would like to encourage as many people as possible to get involved and help SAFE and ESO in shaping up recommendations for stroke prevention, treatment and rehabilitation from 2018 to 2035.
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