Merz Partners with SAFE to Launch New Patient-Centric Spasticity Initiative

Merz Partners with SAFE to Launch New Patient-Centric Spasticity Initiative

MERZ SAFE Initiative

Image: lifewithspasticity.com

Frankfurt, Germany, February 28, 2017—Merz Pharmaceuticals has announced the launch of Life With Spasticity, an educational online platform intended to provide comprehensive information and motivational support for stroke survivors who experience poststroke spasticity. Designed by and for individuals living with spasticity, the project is funded by Merz and has been developed in partnership with Stroke Alliance For Europe (SAFE).

“In addition to providing emotional support and motivation for stroke survivors, the ‘Life With Spasticity’ website also offers a meaningful overview of post-stroke spasticity treatments and rehabilitation processes. We want to ensure that stroke survivors and their caregivers receive accurate and accessible information about the treatment options available to them,” explained Jon Barrick, the President of SAFE. “We believe that everyone who has had a stroke should have the opportunity to make the best possible recovery.” (more…)

Merz Partners with SAFE to Launch New Patient-Centric Spasticity Initiative

Joint Action Addressing Chronic Diseases and Healthy Ageing across the Life Cycle (JA-CHRODIS)

Final Conference
27-28 February 2017, Thon City Centre Hotel, Brussels

Addressing Chronic Diseases: How can the EU effectively implement their prevention, management and care across Member States?

JA-CHRODIS’ aim is to contribute to reducing the burden of chronic diseases and to promoting healthy living and active ageing in Europe. Partners gathered highly promising and cost-effective good practices focusing on health promotion and primary prevention as well as the management of multimorbidity and diabetes, with a view to facilitate their exchange and transfer between European countries and regions. (more…)

Study on walking ability shows path to treatment for stroke survivors

Study on walking ability shows path to treatment for stroke survivors

Walking Ability Study Benefits Stroke Survivors

Stroke is the leading cause of disability in older adults in the United States, but research by Clarkson University Associate Professor of Physical Therapy George Fulk and his colleagues is pointing the way to recovery for people who are relearning how to walk.

Using data collected over a number of years from two other large clinical trials, the Potsdam, N.Y. researcher and his team were able to create and analyze one large database. Their results show a six-minute walk test is the strongest predictor of walking activity in the home and community for stroke survivors. That information, in turn, helps map the most effective steps for physical rehabilitation and independence. (more…)

Keep blood pressure down, so the blood clots don’t go up #StrokeEurope

Keep blood pressure down, so the blood clots don’t go up #StrokeEurope

Rena, aged 81 was widowed recently and lives a semi active life as she suffers from borderline heart and kidney failure. Early one morning, she telephoned a neighbor, requesting she come over immediately. Within five minutes the neighbor, an active volunteer in the national stroke NGO, heard how Rena was suddenly unable to hold her coffee cup. A quick examination of seeing one hand drop when asked to lift both and the drooping of one side of her mouth were sufficient to immediately call an ambulance. (more…)

Blogging after stroke: The blog as a rehabilitation tool

Blogging after stroke: The blog as a rehabilitation tool

Written by Alison Turner

Kasia’s Facebook page is filled with the subjects you might expect a 28 year old woman to be interested in – Zumba, cooking, travel and concerns about money. But you’ll also see references to spasticity, hemiparesis, research and, frequently, hospital, because Kasia has survived two strokes. Stroke does happen to young people.

A journalism graduate, living in the Polish city of Szczecin, she writes with an endearing blend of generosity and youthful determination. It’s not surprising that her Polish blog, lewaczka.pl, which she updates 2 or 3 times a week, attracts an average of 200 readers a day. Occasionally, she also writes entries for the English version of her blog, stroketales.com. Her posts are sincere and frank, sharing her own experiences, but also highlighting the trials of her readers, who contact her for support. We spoke via Skype on a Sunday evening in February 2017. (more…)

Can Transplanted Neurons Help After Stroke?

Can Transplanted Neurons Help After Stroke?

Transplanted neurons incorporated into a stroke-injured rat brain

Today, a stroke usually leads to permanent disability — but in the future, the stroke-injured brain could be reparable by replacing dead cells with new, healthy neurons, using transplantation. Researchers at Lund University in Sweden have taken a step in that direction by showing that some neurons transplanted into the brains of stroke-injured rats were incorporated and responded correctly when the rat’s muzzle and paws were touched.

The study, published in the journal Brain, used human skin cells. These cells were re-programmed to the stem cell stage and then matured into the type of neurons normally found in the cerebral cortex. (more…)

Stroke can be prevented: Campaigns save lives #StrokeEurope

Stroke can be prevented: Campaigns save lives #StrokeEurope

Dušan M. from Serbia was proud that he could eat a lot of greasy and salty food, smoke two packs of cigarettes a day and never had a sick day in his life, until he was 49 and had a stroke while trying to tie his shoelaces and go to work.

-I hate that although now I do everything right, the damage is done, I can’t go back to how I was before- he says to his wife almost every morning when she helps him prepare for the physical therapy.

There are stroke risk factors which can be influenced by every one of us. Switching to a healthy lifestyle could play a big part in decreasing your risk of stroke. Find what motivates you to prevent stroke, to live longer and stay healthy, not just for your sake, but also for your family’s. Blood pressure, atrial fibrillation (arrhythmia), blood sugar and body weight are all manageable risk factors. Start small and control them one by one to increase your chances of a stroke-free life. (more…)

Thrombus- a small word yet a big scare for stroke survivors and their families

Thrombus- a small word yet a big scare for stroke survivors and their families

Written by Alison Turner

The word is Thrombus. From the Greek, thrombos, meaning “lump, piece, clot of blood.” About 90% of strokes are caused by clots blocking blood flow to the brain, and the word carries grim associations for many stroke survivors and their families. It holds a different significance, however, for Frederik Denorme. About once a week, the young PhD student at KU Leuven, Campus Kulak in Kortrijk, Belgium receives the text message, “Frederik, we have a thrombus for you.”

Denorme is 28 years old, and since 2014 has been working his dream job, analysing clots that have been retrieved from stroke patients. When the text message comes through, he makes his way to the stroke unit at his local AZ Groeninge Hospital in Kortrijk. The clot that awaits him has just been removed, and as the patient begins the process of recovery, Denorme, and his supervisor, Prof Dr Simon De Meyer, further their discoveries. (more…)

Early menstruation linked to higher stroke risk

Early menstruation linked to higher stroke risk

Source: TOHOKU UNIVERSITY

Women who started menstruating early in life could later face a higher risk of stroke.

early menstruation stroke risk

Image: pixabay.com

Women who started their periods at the age of 13 or younger, are about 1.8 times more likely to suffer a stroke, than those who started at the age of 15. These women are also more at risk for cerebral infarction, in which a section of brain tissue dies due to reduced blood flow and oxygen. This is according to research recently published in the journal Neuroepidemiology. (more…)

Top 5 of houseworks to exercise your hand

Top 5 of houseworks to exercise your hand

Source: stroketales.com

This is a blog post written by Kasia, young stroke survivor from Poland. She is one of the ambassadors of the Merz-SAFE post-stroke spasticity project.

1. Cooking – nothing is better than doing polish Pierogi (dumplings) or Indian chiapati (roti;p)
kolaż-pierogi

Image: stroketales.com

 

 

 

 

 

 

 

 

 

 

 

2. Hanging your laundry – with clothespin! Great for precise movements;

3. Vacuuming, sweeping – sorry for that! For me it’s best to use healthy hand only for helping sick one. It took time to learn that, but finally I’m here. Healthy hand is resting more, spastic one works more

4. Doing your dishes – a bit precise. Hold something, turn it, put something into something elase, decompose… it’s extremely hard with one hand!

5. Ironing. The thing that I hate doing and wasn’t doing even while being healthy. Only before interviews. But it just must be good. Hand get’s stronger, but putting your shirt on ironing board is pretty hard and precise action, isn’t it?

Well, it’s my tradition to say: Mooom, it doesn’t mean that I will love completing all the chores you want me to!

P.S. My special number six. During communist era my parents bought somewhere plenty of pasta and not milled coffee, you know, in seeds. It was like a miracle. But they left it once in tiny room with two dogs.

After coming back they saw disaster. Our beautiful dogs ripped all packaging and mixed all together. Well. If you know anything about communist Poland, you know, that it couldn’t be wasted. So my parents st there for hours playing in Cinderella game. Separating coffee from noodles.

It’s like an exercise you can get in rehabilitation centers:))