The Action Statement on Heart Failure launched on 7 September 2021 outlines policy recommendations and urges the EU to recognise heart failure as a health priority.
The statement supports growing calls for the development of an EU Action Plan on Cardiovascular Disease, similar to Europe’s Beating Cancer Plan. Click here to find out more.
We are delighted to let you know that Professor Carlo Semenza from Italy and Dr Nuno Ferreira, Professor of Clinical Health Psychology at the University of Nicosia will be presenting at the Life After Stroke: caring for the caregiver webinar on 29 September 2021.
They will be joined by stroke support organisation Cerebrum, Czech Republic, who will be sharing their experiences of developing support for informal carers.
Book your free place now at bit.ly/3xucXqx
The European Stroke Organisation is holding their the 7th Conference (ESOC 2021) at the beginning of September.
It will be a virtual conference and you register here: www.eso-conference.org
Chair of the European Life After Stroke Forum Scientific Committee, Professor Avril Drummond, highlights the lack of emphasis on improving life after stroke for survivors and how this must be addressed.
‘ the needs of stroke survivors and their families….has not previously been given the focus it deserves’
‘few opportunities exist….in this neglected but vital area of care’
The European Life After Stroke Forum series of webinars in 2021 aims to build the life after stroke healthcare, research and patient community, stimulate debate and ultimately improve life after stroke care and build interest for our 1st European Life After Stroke Forum on 11 March 2022. To book your place on the next free webinar on Caring for the caregiver go to https://bit.ly/3xucXqx
Download the pdf here
For more information on the European Life After Stroke webinars go to https://www.elasf.org/
The European Brain Council has updated its factsheet on stroke and now includes more information on rehabilitation and life after stroke.
The Stroke factsheet is one of several disease specific factsheets and part of the #ILoveMyBrain initiative.
Find out more at braincouncil.eu/projects/ilovemybrain/
SAFE’s Director, Arlene Wilkie will be joining the Advocacy Exchange virtual event at 4-6pm EDT.
The event is the largest cross-disease advocacy initiative in healthcare, giving access to patient organisations and free resources from over 50 organisations. Hosted by @GRYTHealth and @BristolMyersSquibb, register at TheAdvocacyExchange.com. #AdvocacyExchange
We are delighted to let you know that the third in our series of free webinars on Life After Stroke: caring for the caregiver, is now open for registration https://bit.ly/3xucXqx
The session looks at some of the challenging aspects posed to informal carers, and the impact that caring for a stroke survivor might have on their lives. It will also cover predictors of wellbeing and resilience in carers and good practice examples of carer support and how to implement them.
If you missed our other events in the Live After Stroke series of webinar, you can now catch up on demand at elasf.org
Heart disease is the #1 killer of women. This is under-recognised with adverse consequences for the #diagnosis & treatment of women. Join our Inspire #Advocacy Speaker Series with Amy Friedrich-Karnik, @WomenHeartOrg, & Cecily Foster, WomenHeart Champion, on July 7! https://bit.ly/3zN6Wqo
A one-hour webinar on 1 July, 11.00 BST/12.00 CEST, Bridging the distance – creating stroke support during COVID-19, will look at how international stroke support organisations have delivered services during the pandemic.
Join the panel, Kelvin Leong, stroke survivor, Shamala Thilarajah, Singapore National Stroke Association and Beth Scrimshaw, Stroke Association in the UK who will share learnings and insights about delivering online support.
This interactive event will be of interest to those working in discharge planning, community/primary healthcare settings, and patient advocacy.
Register here
The official language of SAFE is English although for many members this remains a challenge. Beyond SAFE, the language barrier inevitably limits the opportunity to engage and influence others who otherwise might respond to the communication.
We are thankful to our sponsor Boehringer Ingelheim for funding the translations to French, Portuguese, Russian, Polish and Spanish. At the same time, we would like to show our gratitude and appreciation to the Greek support organisation Hellenic Alliance/ Action for Stroke (HAAS), the Finnish Brain Association, the Norwegian SSO Norsk forening for slagrammede, the Turkish stroke support organisation BEYINDER, Croatian Stroke Society and the Ukrainian stroke support organisation Українська асоціація боротьби з інсультом for independently translating this important document at their own cost.
The popular version of the Stroke Action Plan for Europe, initially generously supported by companies Boehringer Ingelheim, BMS-Pfizer Alliance and Ipsen, is a vital document that outlines key recommendations from seven domains covering the stroke care pathway from Prevention to Life After Stroke.
The original Stroke Action Plan is in English, and we are expecting that translating it to additional languages would significantly increase its reach throughout Europe. This has a paramount importance for SAFE members’ future advocacy work and influencing of European healthcare policy-makers.
In addition to the activities mentioned above, SAFE does have plans for significant dissemination of the Action Plan in order to encourage its implementation. For more information please click here
You can access the PDF version in each of the languages by clicking on their photo below, including the English version for your reference.
