Breaking news – our 1st European Life After Stroke Forum is going virtual!

Breaking news – our 1st European Life After Stroke Forum is going virtual!

We are excited to announce the first ever European Life After Stroke Forum is going virtual.

With so much uncertainty in the midst of the COVID-19 pandemic, we can now ensure that this important event will be able to go ahead and be accessible to many more delegates across Europe.

If the ELASF is not already in your calendar, make sure you add 12 March 2021 and watch this space for more information in the next few weeks.

We’ll be will post regular updates on our website, including how to register, on our website and on social media, in the coming months. If you would like to know more – why not follow us on Twitter @StrokeEurope #ELASF or sign up to our enewsletter for regular updates

Research and investment in all aspects of the life after stroke care pathway has been neglected. This forum is unique and crucial in bringing together the latest research and needs of stroke survivors to contribute to the SAPE and ultimately improve life after stroke across Europe.


Image by Alexandra_Koch from Pixabay

World Stroke Day!

World Stroke Day!

We are proud to support World Stroke Day on 29 October.

1 in 4 of us will have a stroke – Don’t be the One and join the MoveMent – be part of the world’s biggest dance chain to prevent stroke.

Help us raise awareness of stroke on World Stroke Day.

Reach out to everyone you know and ask them to help get the message out and even better to be part of the Global Dance Chain Challenge.

Spread the word about World Stroke Day by sharing on social media and emails.

To find out more follow @WStrokeCampaign or check out their website here

Message from the SAFE President

Message from the SAFE President

Dear Friends,

We are in very difficult times. We have never seen a pandemic like this affecting our everyday lives. I hope you and your loved ones are safe and well. We want to let you know that SAFE is here for you and continuing to work despite all the problems around.

While COVID 19 is at the forefront of our thinking, stroke still exists. We know that many of you will be at the front line of services and will be seeing the impact of COVID on individuals who have suffered from stroke. We want to hear from you, we want to know what is happening to stroke survivors in your country, we want to know what is happening to your stroke support organisations and we want to know your ideas as to how we can help.

In addition to finding out how COVID 19 is affecting you and your country, SAFE has adapted its work for 2020. Unfortunately, we have not been able to meet with our members through our usual regional meetings, but we have managed to been up, virtually, June and we will again in November. We have delayed the launch of our economic burden of stroke report until November year. The SAFE General Assembly will be held in November this year and we will do this virtually as we are not able to gather you together for a face to face meeting. I am also excited to let you know that that our first European life after stroke forum is going virtual! The date of 12 March 2021 remains the same and we will share more information with you over the coming months. We will fund one representative from your SSO, and one therapist or nurse from your country.  The conference will also be open generally to delegates interested in improving life after stroke services. More information, please click here.

What is happening in the world is a lot for everyone to take in just now, and everyone is having to rapidly adapt their lives on a daily basis. I would like to thank all of you for all the exceptional work you are doing. Please continue to keep well and be safe, do what you can to ensure the survival and sustainability of your stroke support organisation, and we hope to hear from you soon.

With best wishes,

Jon Barrick

On behalf of the Board of SAFE

The European Stroke Organisation-World Stroke Organisation conference has gone digital!

The European Stroke Organisation-World Stroke Organisation conference has gone digital!

The European Stroke Organisation-World Stroke Organization 2020 conference has gone digital!

This is a great opportunity to hear about the new and exciting international stroke research that is happening. Here is some more information for you:

SAFE will also have a digital booth at the conference – please visit us!

if you are interested in attending, click here to register:


Meet the new recruits to SAFE’s team!

Meet the new recruits to SAFE’s team!

We are delighted to introduce to two new recruits to SAFE’s team!

Caroline is joining us as our new communications manager and Lora as our new campaigns manager. Please join us in warming welcoming them to the SAFE family.

Click here to find our more!


Stroke Action Plan for Europe

Stroke Action Plan for Europe

SAFE recently co-hosted the Stroke Action Plan for Europe ‘kick off’ meeting with the European Stroke Organisation. The Plan 2018-2030 outlines a set of key recommendations that if implemented would improve the care and outcomes for stroke patients and stroke survivors across the whole care pathway.

We brought together stroke support organisation and national scientific societies from all over Europe to discuss how the Plan could be implemented across all European countries. This is a very exciting step towards providing better support to stroke patents and stroke survivors. We look forward to sharing more information with you over the coming months.

Here is the press release for more information

We are hiring a communications officer

We are hiring a communications officer

Less than five days to apply! We are looking for a communications officer on a fixed term basis. This is an exciting opportunity to join the struggle against stroke. Stroke is the number one cause of severe long-term disability in Europe and is the second biggest killer in the world. Join our team and share your passion for health and communications! With 35 members organisations across Europe, advocacy work at the EU, a European Life after Stroke conference to market and deliver in spring 2021 in Barcelona, and social media to maintain there is a lot of variety in this role and many innovative possibilities.

You will:

  • be an integral member of our team
  • have responsibility for delivery of key communications projects by producing exciting materials and content
  • manage our digital communications: our websites, social media channels and email marketing.

The role

  • Location: home based
  • Self-employed, part time (flexible but minimum of 14 hours a week), 8-month contract, €13,500
  • Deadline to apply midday, 24 July
  • Interviews: via videoconference, Thursday 30 July and Friday 31 July

To apply

If you have any questions about the role, please do not hesitate to get in contact with Arlene Wilkie, Director General,

To apply, please submit a covering letter, in English, on no more than two sides of A4 detailing how you fit the person specification outlined in the job description. Please also submit your CV and a completed equal opportunity monitoring form to

The full job description and our equal opportunities form can be downloaded via the links below:

Note: we are not using an agency for recruitment purposes

Image by Mohamed Hassan from Pixabay

World Stroke Organisation webinar 8 July 2020

World Stroke Organisation webinar 8 July 2020

The World Stroke Organsiation is running a three part series titled ‘Maintaining Stroke as a Priority’. In this series stroke support organisations from the Americas, Europe and Asia/Oceania have highlighted the impact of COVID 19 on people with lived experience of stroke across the stroke pathway, discussed the responses and innovations of stroke support organisations and signposted to patient education resources available globally. Join them for the last in their Maintaining Stroke as a Priority webinar series, 14:00 GMT/UK time, 09:00 EDT time, on Wednesday 8 July with:

  • Juliet Bouverie (Stroke Association UK): Discharge/transitioning home
  • Patrice Lindsay (Heart and Stroke Canada): Secondary prevention


European Life After Stroke Forum – call for abstracts

European Life After Stroke Forum – call for abstracts

Today we are launching a call for abstracts for the Ist European Life After Stroke Forum which will be held on 12 March 2021.

Our conference programme covers a range of topical issues in life after stroke as well as cutting-edge developments in response to COVID-19. The programme will comprise keynote lectures by eminent invited speakers supplemented by contributed talks and a poster session. Our draft programme is here.

We are now seeking abstracts for the Life After Stroke Forum, which may give those interested an opportunity to present either a ten-minute oral presentation or a poster presentation.

We are calling on for applications in two areas:

  • Scientific applications: this may be for completed for ongoing trials and studies in the broad area of life after stroke.
  • Grab and Steal: this is to share experiences of service developments in life after stroke where these original ideas and innovative practices could be used by others.

For more information on how to apply – click here.

“Life after stroke is a neglected area of the stoke care pathway. It is a particularly important issue for stroke survivors and their carers.

To address this issue, SAFE is organising a first of its kind event in Europe – a one day Life After Stroke Forum.

This will create an opportunity for those who have an interest in this area, whether from a research, policy, advocacy, or support oriented perspective, to come together to share and network.

As chair of the European Life After Stroke Forum scientific conference committee I am delighted that SAFE is launching its call for abstracts today. I am looking forward to receiving excellent applications, whether scientifically, or service development focused, from all over Europe”. Professor Avril Drummond

Image by mohamed Hassan from Pixabay