Dec 3, 2021
The Minister of Health of the Generalitat de Catalunya, Josep Maria Argimon, has signed the letter of adherence to the Stroke Action Plan for Europe 2018- 2030.
Alongside the members of the Catalan Steering Committee of the Stroke Action Plan for Europe, which includes representatives of one of members Fundacio Ictus, the Catalan Health Minister highlighted the Catalan Health Department’s commitment to this initiative.
Find out more about the Stroke Action Plan for Europe Declaration at: https://eso-stroke.org/declaration-for-action-on-stroke-launches-on-european-stroke-awareness-day/
For more information about the Stroke Action Plan for Europe visit: http://actionplan.eso-stroke.org
Nov 23, 2021
Take a Selfie and help the FAST Heroes set a new official world record
The FAST Heroes educational campaign wants to raise awareness of the symptoms of stroke. As part of their target to reach one million children, FAST heroes plan to set a new official world record for the largest online photo album. To help them reach their target of 2,0000 photos, you can upload your own photo wearing a superhero mask at https://recordattempt.fastheroes.com
If you upload four photos, you will receive a certificate of participation. If you do not have a mask, you can print your own at https://recordattempt.fastheroes.com/gr/mask
FAST Heroes was created by created by the University of Macedonia in collaboration with the Angels Initiative in 2019 to help children understand the importance of the immediate action we need to take when someone has a stroke.
The programme is now active in more than 20 countries worldwide, including many European countries, South Africa, Canada, United Arab Emirates, Iceland, Singapore and others.
Nov 16, 2021
The Stroke Media and Advocacy Resource Training (SMART) videos cover a range of topics, such as how stroke support organisations can prepare an advocacy plan, how they can involve stroke survivors in national advocacy work and how they can engage with the local media and influence decision-makers.
Based on our media and advocacy training workshops organised in 2020, the videos are available to view on our YouTube channel to support anyone who is trying to implement the Stroke Action Plan for Europe in their country.
You can watch the SMART videos here: https://bit.ly/3EzhsTN
Visit regularly https://actionplan.eso-stroke.org/ for further materials that will be useful for your stroke advocacy campaign.
Nov 16, 2021
The Active Citizenship Network has launched an online survey: The impact of the COVID-19 pandemic on non-communicable and chronic patients’ therapeutic adherence across Europe.
The questionnaire is for patient associations and advocacy groups, including stroke support organisations.
The survey is anonymous but if you contribute, your organisation will be cited in the final report. Click here to fill in the EU survey!
The deadline is 9 December 2021.
Nov 8, 2021
If you missed our virtual event last month, do not worry, you will now be able to watch the session at your leisure as it now available on demand at our European Life After Stroke website www.elasf.org
Jana Dobrkovská from stroke support organisation Cerebrum in the Czech Republic, Professor Carlo Semenza (Italy) and Dr Carla Pereira (Portugal) discuss the importance of looking after those who are the caregivers of stroke survivors.
‘Very interesting webinar! Congrats to SAFE TEAM for organizing this excellent webinar’ Event participant
Nov 8, 2021
The Global Heart Hub is bringing together the cardiovascular patient community from across the world for its first annual Unite Summit.
This virtual conference will take place over two half days, with the aim of uniting and empowering cardiovascular patients, advocates and organisations on matters of importance to the community. The sessions will delve into:
- The impact of the COVID-19 pandemic on the cardiovascular patient community and how the lessons learned can catalyse change
- How policymaking works, and how patients can use their understanding to advocate effectively
- What policies and guidelines in specific cardiovascular disease areas mean for patients, and what are the associated advocacy issues
- The benefits and drawbacks of digital innovation from a cardiovascular disease patient perspective.
Register for this FREE event at https://globalhearthub.org/unite/
Nov 8, 2021
The annual conference of the MEP Interest Group on Brain, Mind and Pain will explore best practices in reducing health inequalities for those living with neurological disorders and chronic pain conditions.
There will be a focus on stigma, access and patient empowerment with a look at population groups prone to experiencing healthcare inequities, such as older people and women.
See agenda and link to register here: https://efna.cplus.live/sign-up/turning-principles-into-action
Nov 2, 2021
EACH brings together the leading health organisations, including SAFE, with an interest to promote policy action and investment to improve the cardiovascular health of European citizens.
EACH submitted a proposal to the Commission for a Joint Action on secondary prevention of cardiovascular disease for the EU4Health 2022 work programme. Secondary prevention helps to detect cardiovascular disease at an early stage, for example, through targeted screening in risk groups. By diagnosing at an early stage and ensuring appropriate referral and treatment, further development of the disease can be halted, helping to reduce morbidity and mortality. The EU4Health Joint Action will support Member States and the EU to raise awareness of the disease, improve data collection, share best practices and identify measures to promote secondary prevention.
Find out more at cardiovascular-alliance.eu/each-welcomes-the-eu-commission-eu4health-programme/
Nov 2, 2021
The Hub aims to provide health professionals with concise and practical information on both the treatment of COVID-19 and the impact on non-COVID-related care.
Click on the COVID HUB links - touchCARDIO COVID Hub and touchNEUROLOGY COVID Hub - to find the content most relevant to you.
New content is being uploaded regularly.
Nov 2, 2021
The inaugural Heart Failure Policy Summit, takes place from 16 to 18 November 2021.
The free, online summit will bring together patient advocates, healthcare professionals, clinical leaders, policymakers and other key figures in system transformation.
It aims to empower heart failure leaders and advocates to take action and engage decision-makers in their respective countries.
To register click here
