Active Citizenship Network launches an Impact of COVID-19 Survey

Active Citizenship Network launches an Impact of COVID-19 Survey

The Active Citizenship Network has launched an online survey: The impact of the COVID-19 pandemic on non-communicable and chronic patients’ therapeutic adherence across Europe.

The questionnaire is for patient associations and advocacy groups, including stroke support organisations.

The survey is anonymous but if you contribute, your organisation will be cited in the final report. Click here to fill in the EU survey!

The deadline is 9 December 2021.

European Life After Stroke webinar: Caring for the carer available on demand 

European Life After Stroke webinar: Caring for the carer available on demand 

If you missed our virtual event last month, do not worry, you will now be able to watch the session at your leisure as it now available on demand at our European Life After Stroke website www.elasf.org   

Jana Dobrkovská from stroke support organisation Cerebrum in the Czech Republic, Professor Carlo Semenza (Italy) and Dr Carla Pereira (Portugal) discuss the importance of looking after those who are the caregivers of stroke survivors.  

 ‘Very interesting webinar! Congrats to SAFE TEAM for organizing this excellent webinar’ Event participant

Global Heart Hub Unite Summit, 22 to 23 November, 15.00 – 18.00 CET

Global Heart Hub Unite Summit, 22 to 23 November, 15.00 – 18.00 CET

The Global Heart Hub is bringing together the cardiovascular patient community from across the world for its first annual Unite Summit.

This virtual conference will take place over two half days, with the aim of uniting and empowering cardiovascular patients, advocates and organisations on matters of importance to the community. The sessions will delve into:

  • The impact of the COVID-19 pandemic on the cardiovascular patient community and how the lessons learned can catalyse change
  • How policymaking works, and how patients can use their understanding to advocate effectively
  • What policies and guidelines in specific cardiovascular disease areas mean for patients, and what are the associated advocacy issues
  • The benefits and drawbacks of digital innovation from a cardiovascular disease patient perspective.

Register for this FREE event at https://globalhearthub.org/unite/

The MEP Interest Group on Brain, Mind and Pain virtual event, Turning principles into action: best practice in reducing health inequalities, 19 November, 10.00 – 13.00 CET

The MEP Interest Group on Brain, Mind and Pain virtual event, Turning principles into action: best practice in reducing health inequalities, 19 November, 10.00 – 13.00 CET

The annual conference of the MEP Interest Group on Brain, Mind and Pain will explore best practices in reducing health inequalities for those living with neurological disorders and chronic pain conditions.

There will be a focus on stigma, access and patient empowerment with a look at population groups prone to experiencing healthcare inequities, such as older people and women.

See agenda and link to register here: https://efna.cplus.live/sign-up/turning-principles-into-action

Calling for a comprehensive EU policy response to improve the cardiovascular health of European citizens 

Calling for a comprehensive EU policy response to improve the cardiovascular health of European citizens 

EACH brings together the leading health organisations, including SAFE, with an interest to promote policy action and investment to improve the cardiovascular health of European citizens.

EACH submitted a proposal to the Commission for a Joint Action on secondary prevention of cardiovascular disease for the EU4Health 2022 work programme. Secondary prevention helps to detect cardiovascular disease at an early stage, for example, through targeted screening in risk groups. By diagnosing at an early stage and ensuring appropriate referral and treatment, further development of the disease can be halted, helping to reduce morbidity and mortality. The EU4Health Joint Action will support Member States and the EU to raise awareness of the disease, improve data collection, share best practices and identify measures to promote secondary prevention. 

Find out more at cardiovascular-alliance.eu/each-welcomes-the-eu-commission-eu4health-programme/ 

Heart Failure Policy Summit – 16 to 18 November 

Heart Failure Policy Summit – 16 to 18 November 

The inauguralHeart Failure Policy Summit, takes place from 16 to 18 November 2021.

The free, online summit will bring together patient advocates, healthcare professionals, clinical leaders, policymakers and other key figures in system transformation.

It aims to empower heart failure leaders and advocates to take action and engage decision-makers in their respective countries. 

To register click here  

Take action on World Stroke Day 29 October.

Take action on World Stroke Day 29 October.

On World Stroke Day, the World Stroke Organisation is organising several events you might want to be involved in.

It isn’t too late to register for the WSO congress 28-29 October. Arlene Wilkie, our Director General, will be speaking on the 28th. Register: here

Join the World Stroke Day panel discussion at 3pm CET: No time to waste! Saving lives and reducing disability by accelerating worldwide access to acute stroke treatment.

Every minute from the onset of stroke to treatment contributes to a loss of brain function and increases the probability of long-term impairment, disability and death. For governments, every year that goes by without action ramps up the social and economic impact of stroke.

Improving outcomes requires effort on all front but improvements are possible, even in the most challenging circumstances. This event will bring together leaders from patient, policy and industry to discuss opportunities and challenges to save #Precioustime and deliver access to quality stroke care for all.

With panel moderator Rageh Omaar, ITV Global Health Correspondent, stroke survivor and Gold Medal Olympian, Michael Johnson and Sheila Martins World Stroke Organization President-elect, World Stroke Campaign and WHO, NCD expert Slim Slama.

Register here

Save #Precioustime

Support the global drive on World Stroke Day in to raising awareness of stroke symptoms and the importance of saving #Precioustime.

Create Your Personal World Stroke Day Message with the social media post builder.

Share this video to help promote the message that acting FAST is important as minutes can save lives

Minutes Save Lives – know the signs, say its a stroke and save #Precioustime

Angels Initiative supports World Stroke Day

Angels Initiative supports World Stroke Day

SAFE and the Angels Initiative support World Stroke Day on 29 October. We recognise the importance of learning the symptoms of stroke and the importance of urgent access to appropriate medical care as minutes can save lives.

The Angels Initiative supports the provision of patient information to help patients, their families and carers understand their condition, be more actively involved in their treatment decisions and learn more about the important next steps to recovery.  The materials are available in 15 languages and can be found at www.safestroke.eu/safe-angels-initiative/

The Angels Initiative is a non-commercial healthcare project dedicated to improving stroke patients’ chance of survival and living a disability-free life. The Initiative has enabled multi-disciplinary stroke teams around the world to access education, standardisation tools, consultancy, community and quality monitoring processes that enable them to act faster to minimise the burden of stroke on patients’ lives.

More information about the Save #PreciousTime campaign on World Stroke Day visit www.world-stroke.org/world-stroke-day-campaign