Jun 4, 2018
Written by Jelena Misita, SAFE Awareness and Advocacy Manager
Prof. Valery Feigin, photo credits: www.stroke.net.nz
I first met Prof. Valery Feigin in person in Gothenburg this May, when he visited SAFE stand at ESOC 2018. I knew him, of course, from the literature, with his name coming across many references. According to his official biography, this was hardly any wonder, as he had published over 600 research articles over his career and his publications have been cited over 30,000 times, within his prime research interest fields- prevention and management of stroke, epidemiology and traumatic brain injury.
Imagine my surprise when he suddenly appeared at a patient support organisation stand, shook my hand and said he’s started a website for patient support in New Zealand. I just had to tell him that in stroke world, he is nothing short of a celebrity and that we will be honoured to help him spread the news about his latest project. The project is in fact being realised through the New Zealand Stroke Education Trust, a charitable organisation based in New Zealand.
We set up an interview and I used the opportunity to ask him not only about his current project, but also about his view on the Stroke Action Plan for Europe 2018-2030, ICD-11 and how could these things lead to a real-life impact on stroke prevention, treatment and after-care. (more…)
Jun 1, 2018
Written by Maties Salom, Fundació Ictus Barcelona
Barcelona, 1st June 2018- The Fundació Ictus, a stroke support organisation from Barcelona, organised today a gathering related to the challenges that stroke presents for all European countries. At this meeting, the Catalan Foundation introduced data on stroke in Catalonia, following the path opened by the Stroke Alliance for Europe with The Burden of Stroke Report, published in 2017. The conference “Catalunya i Europa davant l’ictus” (“Catalonia and Europe in front of the stroke“) was opened by SAFE President, Jon Barrick, and European Stroke Organisation Past President, Valeria Caso. The meeting convened more than 150 people with different professional backgrounds- medics, researchers, stroke survivors and their relatives.
Approximately 13.000 stroke patients get admitted in the Catalan hospitals every year. This condition’s incidence is almost 180 cases for every 100.000 people and mortality is 29,5/100.000. The conference faces issues in domains of research, primary prevention, stroke services organisation, acute stroke management, rehabilitation and life after stroke.
Speakers addressed all of these points in two round tables which helped build a complete overview of the situation with stroke in Europe and outlined a road map for all the countries over the next decade.
The meeting mainly focused on the stroke situation in Catalonia and presented the Catalan point of view of the Stroke Action Plan for Europe 2019-2030, recently presented in the European Parliament by ESO and SAFE. The Member of the European Parliament, Mr Ramon Tremosa, provided the institutional point of view of the discussed issues.
The neurologist from Barcelona, Mr Angel Chamorro, presentated the current state of stroke care in Catalonia, which is very good at the moment, but they are looking at the 2030 targets and striving for excellence.
May 31, 2018
Brussels, 31st May 2018 – The eLearning Module 2 of the Stroke Support Organisation Faculty Tool (SSOFT) is published today at the following address www.ssoft.info.
SSOFT’s second module focuses on the principles around advocacy, and is delivered in ten bite-sized sub-modules:
2.1 – Why does stroke care need to improve?
2.2 – What is advocacy?
2.3 – Unmet needs
2.4 – The value of evidence
2.5 – Decisions
2.6 – The health policy environment
2.7 – Identifying the decision makers
2.8 – Setting clear objectives
2.9 – Developing a strategy
2.10 – Your advocacy work
The module provides learners with a wealth of knowledge and includes videos, interactive content and activities. Learners will be able to work through the sub-modules at their own pace, earn rewards and share their progress on social media. (more…)
May 30, 2018
This May in 12 European countries: Spain, Serbia, Poland, Czech Republic, Latvia, Croatia, Macedonia, Greece, Ukraine, Georgia, Hungary and Turkey, stroke patients and their carers in a selected number of hospitals will be provided with information on stroke and important next steps on their path to recovery.
The patient-focused materials are made of five brochures, including a list of national, regional and local stroke support organisations, with their contact details, in order that patients and carers can access further support in the months and years following their stroke. The information provided in the brochures are kindly provided by the Stroke Association UK*and then translated to all project languages, applying the information standard procedure for the translation.
The original brochures are in English language and you can access their original content by following the links below:
Transient ischaemic attack
Next steps after stroke
Supporting a stroke survivor
When you have a stroke
How to reduce your risk
Please scroll down to see who is our member organisation in each project country and click on each photo to access the brochures in different languages.
Hungarian language – SAFE member Stroke Liga Nemzeti
Latvian language: Parsirdi.lv
Croatian language: Croatian Stroke Society (HDPMU)
Polish language: Fundacja Udaru Mózgu
Spanish language: Federación Española del Ictus: FEI
Georgian language: Mkurnali Foundation
Czech language: Organisations CEREBRUM and Sdružení pro rehabilitaci osob po cévní mozkové příhodě (Association for rehabilitation of persons after stroke)
Ukrainian language: School for Stroke Survivors (SSS) “Victory over the stroke”
*The Stroke Association UK: Copyright and disclaimer
The Stroke Association does not take responsibility for any errors that may appear in the translation, or the effects that an error may have. The original information contained in the publication should only be considered accurate until the published review date.
Please be aware that this information is not intended as a substitute for specialist professional advice tailored to your situation. We strive to ensure that the content we provide is accurate and up-to-date, but information can change over time. So far as is permitted by law, the Stroke Association does not accept any liability in relation to the use of the information in this publication, or any third-party information or websites included or referred to.
May 30, 2018
SAFE is proud to be part of the Angels Initiative project, providing critical information to stroke patients when they most need it, already in the stroke unit. The realisation of this project started simultaneously this May in 12 European countries: Spain, Serbia, Poland, Czech Republic, Latvia, Croatia, Macedonia, Greece, Ukraine, Georgia, Hungary and Turkey. (more…)
May 28, 2018
The text first appeared on the World Stroke Organisation blog
The World Stroke Organization leadership team and stroke survivors drawn from our membership network are in Geneva this week. They are contributing to critical health policy discussions taking place in and around the 71st World Health Assembly. In a packed programme they will be participating in sessions; contributing to partnership side-events; meeting with WHO technical leads and collaborating with our advocacy colleagues in the Non-Communicable Disease (NCD) arena to improve stroke prevention and equitable access to quality clinical care. (more…)
