How much does a stroke cost? SAFE is initiating a research project in 33 European countries

How much does a stroke cost? SAFE is initiating a research project in 33 European countries

Burden of Stroke Report, 2017

The Stroke Alliance for Europe, as the largest pan-European organisation of stroke patient support organisations and the European Stroke Organisation, the largest European organisation of stroke professionals have increasingly been working together and are committed to sharing expertise and best practice to ensure the best outcomes for stroke patients.

Together we are currently developing the revised Stroke Action Plan for Europe which will be launched in May 2018. SAFE will follow this with the results of our next key piece of commissioned research, the Economic Impact of Stroke in Europe.

The primary goal of this study by a health economics team from the University of Oxford is to increase the priority given to stroke and to reinforce and underpin the influencing of European and country-level policy work already underway as a result of the Burden of Stroke Report. (more…)

EU funded project SVDs@target investigates small vessels in the brain to understand more about the underlying pathologies of stroke and dementia

EU funded project SVDs@target investigates small vessels in the brain to understand more about the underlying pathologies of stroke and dementia

Anna Kopczak, MD, study physician & neurologist in SVDs@Target project

Stroke and dementia rank among the most pressing health issues in Europe. Cerebral small vessel diseases (SVDs) have emerged as a central link between these two major co-morbidities. SVDs account for more than 30% of strokes and at least 40% of dementia cases.

They encounter multiple distinct diseases that can be separated based on their underlying genetic defects, risk factors, and clinical presentations. Despite this profound impact on human health, there are no treatments with proven efficacy against SVDs.

SAFE was glad  to have a talk with Anna Kopczak, MD, study physician & neurologist from the Institute for Stroke and Dementia Research (ISD) at Klinikum der Universität München, Munich, Germany. (more…)

Action Plan for Stroke in Europe 2018-2030: The draft document now open for comments

Action Plan for Stroke in Europe 2018-2030: The draft document now open for comments

On behalf of the Action Plan Steering Committee, we cordially invite you to contribute with your valuable comments & input on the Action Plan for Stroke in Europe Document.

Please click here to comment on the seven domains and the translational research priorities. The platform is opened until 11 March 2018.

Please click here to follow the instruction on google Drive for commenting.

We would like to encourage as many people as possible to get involved and help SAFE and ESO in shaping up recommendations for stroke prevention, treatment and rehabilitation from 2018 to 2035.

(more…)

The first Slovenian Stroke Club Forum in 2018

The first Slovenian Stroke Club Forum in 2018

Written by Jelka Janša, Slovenian Stroke Support Organisation

On February 12 -13, 2018 the Slovenian Stroke Club Forum took place at the Topolšica Thermal Spa. The first Slovenian forum was launched in the late 90-ties, followed by the positive examples from the Stroke association in the United Kingdom. In Slovenia, since then, each year there will be between two to four forums organised, depending on the content, size and amount of activities within the organisation. After forum being convened by the president of the Slovenian Stroke Support Organisation, a special chair is appointed for each forum.

Forum consist of the presidents from the local stroke clubs and board members. Forum itself supports the operational activities of the organisation, discusses immediate and future plans, liaise clubs’ activities with relevant local institutions and local associations, covers communication with local media, enables local fundraising, supports visits among the clubs. Usually, as an add-on, there would also be a professional lecture on a topic of interest to the forum. This time the topic was the Burden of stroke among stroke survivors and their relatives in Slovenia.

The first Stroke Club Forum in 2018 was convened by Mr. Milan Čuček, the president and Mrs. Tatjana Erjavec, the vice-president of the Slovenian Stroke Support Organisation. The participants, presidents from local clubs and some board members, were discussing and analyzing activities in 2017, and annual and long term plans of the Organisation. Immediate action plans have been targeted toward improvement of the ongoing monthly clubs’ meeting. Further they were exploring ways to increase membership and expanding fundraising capabilities. In addition, there are two activities planned for May 2018; organized events to mark the European Stroke day and promotion of »The Stroke Action Plan«document in Slovenia.
Overall, forum was dynamic, stimulating and allowed plenty of constructive discussion.

 

Slovenian Stroke Club Forum, photo by Združenje bolnikov s cerebrovaskularno boleznijo