Jan 15, 2019
Written by Anita Arsovska and Maja Bozhinovska
On the occasion of the World Stroke Day, 29th October 2018, the Macedonian organization for a fight against stroke, Macedonian Neurology Society, Society of nurses in Neurology and the Red Cross have traditionally organized many activities on several locations.
We carried out public activities in Skopje, Shtip, Tetovo and Strumica that aimed to increase the general knowledge of the population of stroke, i.e. how to promptly recognize signs and symptoms of this disease and which measures should be taken for stroke prevention.
On the 28th October, Elena Lichkova in Shtip, Danijela Samoilovska Vojtikiv in Tetovo, Biljana Ivanova in Strumica, Anita Arsovska and Gordana DImeska in Skopje organized these activities, during which, free measurement of blood pressure and blood sugar was performed, printed material on stroke facts was distributed and prevention advise were given.
As usual, these activities were coordinated with the World Stroke Campaign organized by the World Stroke Organization. Our campaign was successful owing to the great help of our nurses, Neurology residents and young specialists who volunteered and helped to realize our goals during the World Stroke Day 2018. All participants wore T-shirts with the sign BRZO (FAST) with logos of all organizations that are involved in the World Stroke Day. We also translated posters, banners and leaflets provided by the World Stroke Campaign and distributed them during the activities.
We determined the vascular risk factors in over 500 people and they were advised how to protect themselves from stroke. These activities were posted on the website of the society and on Facebook.
The activities continued on the 29th October 2018, when Gordana Dimeska and the Society of Nurses in Neurology organized a scientific meeting with several lectures for nurses on the subject of stroke, contemporary diagnostic and therapeutical approach as well as stroke risk factors.
On the 12th November 2018, in the Holiday Inn Hotel in Skopje, Anita Arsovska and the Macedonian Neurology Society organized a scientific meeting on the subject World Stroke Day. Invited speakers were Ivan Barbov, MD, PhD (University Clinic of Neurology), Ass. Prof. Hristo Pejkov (University Clinic of Cardiology), Prof. Dr. Anita Arsovska (University Clinic of Neurology) and Dr. Menka Lazareska (University Institute of Radiology). The scientific meeting was supported by the pharmaceutical company Bayer and was opened by Ivan Barbov, MD, PhD, who pointed out the significance of the contemporary multidisciplinary approach in the diagnosis and treatment of patients with stroke, that aims to contribute to better functional outcome of the patients, but also to decrease the burden of this disease in our society.
Than, Ass. Prof. Hristo Pejkov talked on the subject of Atrial Fibrilation, its significance as one of the most frequent stroke risk factors, how it is diagnosed and treated, with the application of direct (new) oral anticoagulants.
Prof. Dr. Anita Arsovska delivered a lecture on Embolic Stroke of Undetermined Source, where she described the necessary diagnostic criteria and the latest studies results regarding the treatment of this specific type of stroke. Prof. Arsovska than continued with the contemporary therapeutical approach of ischemic stroke. She talked about the therapy in the acute phase and the newest guidelines regarding the recommendations for secondary stroke prevention, especially the application of anticoagulation therapy in patients with stroke and atrial fibrillation.
Dr. Menka Lazareska gave a talk on Application of mechanical thrombectomy in patients with ischemic stroke, contemporary guidelines, devices and techniques of performance that enable fast diagnosis and treatment of acute ischemic stroke patients.
This scientific meeting was attended by more that 100 participants who showed great interest in all lectures and at the end they agreed that this multidisciplinary approach is necessary for faster, more effective and more successful treatment of the patients with stroke.
All these activities were covered by the media, and Prof. Anita Arsovska went on several TVs where she promoted these events, and she also talked about stroke risk factors, signs and symptoms, answering questions from the audience.
We plan to continue with our activities this year as well, we intend to support European and World Stroke Day, Angels Initiative; to promote SOFT and Stroke Action Plan for Europe 2018-2030.
Jan 14, 2019
Under the patronage of the Romanian Presidency of the Council of the EU, SAFE will explore the role of policy in tackling stroke in 28 March event
The Stroke Alliance for Europe (SAFE) invites you to attend their ‘Joining forces to prevent and control non-communicable diseases: The role of policy in tackling stroke’ event on 28 March 2019. The event will look into the role of policy and policy stakeholders in combating stroke-related challenges and addressing the burden of stroke, as well as in achieving the ambitious targets of the ‘Stoke Action Plan for Europe 2018-2030’. With an expected 35% increase in the incidence of stroke in Europe by 2035, this conference represents an important opportunity to bring European, national and local policy-makers and other stakeholders together to address the disparities across the stroke care pathway between and within European countries.
The event, which will be jointly organized by SAFE and the Romanian National Stroke Association, will be held under the patronage of the Romanian Presidency of the Council of the EU and hosted at the European Committee of the Regions (CoR) by Karsten Uno Petersen, CoR member and health rapporteur. The discussions will be integrated into the expected health priorities for the Romanian and upcoming Finnish and Croatian presidencies, such as better care for an ageing society, the role of primary prevention to counter the burden of chronic diseases, and equal access to care for all European citizens.
SAFE will soon launch a dedicated web section where you will find more information about the conference, including agenda and registration instructions. Stay tuned for more information!
About the Stroke Action Plan For Europe 2018-2030
The Action Plan focuses on seven key domains, namely primary prevention, organisation of stroke services, management of acute stroke, secondary prevention, rehabilitation, evaluation of quality and outcomes as well as life after stroke. It outlines four overarching targets to be achieved by all European countries and health systems by 2030, which are complemented by further specific targets set for each of the seven domains. SAFE is currently pursuing its dissemination and implementation at national, regional and local levels.
About the Romanian National Stroke Association (ANRS)
ANRS is an independent, not-for-profit, non-governmental and apolitical Romanian association of physicians with scientific, medical and social goals regarding stroke prevention and management optimization in accordance with the European and WHO standards. The association organizes congresses, conferences, round tables, practical demonstrations and symposia that seek to promote up-to-date stroke education, according to the latest scientific research and validated therapeutic progress.
About the Romanian Presidency of the Council of the European Union
Romania will hold the Presidency of the Council of the EU from January to June 2019. The Council of the European Union is the institution where the governments of the EU Member States defend their own country’s national interests in the negotiation of the legislative and non-legislative files. Every EU Member State has the obligation to hold the Council Presidency, which changes every six months.
About the European Committee of the Regions
The European Committee of the Regions is the voice of regions and cities in the EU, aiming to reduce the gap between EU institutions’ work and EU citizens. It is composed of more than 350 local and regional elected representatives from across the EU and advises on new laws that have an impact on regions and cities (which is 70% of all EU legislation).
Jan 11, 2019
The Stroke Alliance for Europe (SAFE), participates in EU funded research projects. Our involvement in research allows us to stay up-to-date on the latest research breakthroughs and promising treatments and to ensure that this potential live-saving knowledge reaches patients and healthcare professionals all across Europe. Our major strength is dissemination.
This video contains updates from five research projects that SAFE is actively involved in and these information have already been translated to Greek language by the Cyprus Stroke Organisation and the Hellenic Alliance/ Action for Stroke, to Slovakian by our member organisation Porazka.sk, the Croatian Stroke Society, with many other translations to come in the next couple of months.
Jan 11, 2019
Article written by Francesca Fedeli, Founder of Fightthestroke.org, advocating for young stroke and CP survivors
Fightthestroke has been selected among 65 practices and 11 policies from around the world that help persons with disabilities on the Zero Project Award 2019, celebrating this year the topic of Independent Living and Political Participation. Project Mirrorable indeed has been awarded as a unique platform that improves the Motor Function in Young People with Cerebral Palsy.
Fightthestroke, an Italian social enterprise founded in 2014, has developed an online platform called ‘Mirrorable’ to support rehabilitation of young stroke survivors. Mirrorable is a home-based therapy programme based on Action Observation Treatment, which states that by observing and imitating the actions of others we trigger specific neurons (‘mirror neurons’) in our own brain. Young stroke survivors are paired through AI and via a video platform and undertake tasks together to improve motor skills. A clinical trial on children with unilateral cerebral palsy has demonstrated an improvement in hand motor function compared to traditional rehabilitation, along with high levels of adherence and engagement.
“MaVi discovered herself for the first time, when practicing with Mirrorable in front of the TV screen. The project for me was “moving”, it touches the heart and, if there is a mirror heart, it touches it too!”
– Valentina, mother of MaVi, who took part in the Mirrorable pilot
Problems Targeted
There are few effective and accessible evidence-based solutions to help rehabilitate motor skills in the estimated 17 million children with cerebral palsy worldwide.
Solution, Innovation, and Impact
The Mirrorable platform uses the scenario of learning to become a magician to encourage young stroke survivors to practice motor skills every day for a month. Children in the Mirrorable’s clinical trial received a toolkit with a computer, a 3D camera, and selection of booklets and magic tricks. They used these to imitate the magician in videos on a cloud-based platform. They were also matched with peers via video link to practice together and learn from each other. The IT-platform uses an algorithm to ensure the best possible match in terms of motor skills, cognitive abilities, etc. to support reciprocal teaching and rehabilitation. The gaming approach of Mirrorable increases the appeal for children and encourages them to practice. In the market version, the 3D camera has been replaced by artificial intelligence technology which tracks and records the child’s movements and emotions so that progress can be measured by the child, family members, and health professionals. Results of a clinical trial, presented in 2018, showed a 26 per cent improvement in motor function, increased family engagement, and 100 per cent adherence to the daily exercises.
Funding, Outlook, and Transferability
Support developing Mirrorable and the clinical trial came from corporate fundraising, grants and private donors, but the project was especially driven by the Fightthestroke co-founders Francesca Fedeli and Roberto D’Angelo who experienced themselves a young stroke survivor in their family. Following the trial Mirrorable is now developing a business model to bring the product to a wider market, while keeping prices as low as possible for families of young stroke survivors.
Mirrorable’s cloud-based technology makes easily transferable, and the operating system is already available in Italian, Spanish and English. Fightthestroke is exploring whether the programme might be appropriate for other target groups, such as adult stroke survivors or people with Parkinson’s disease. Fightthestroke has also developed an offline programme to complement Mirrorable’s online platform, and held its first intensive Mirrorable sports camp, including Habit and AOT treatments, for children with unilateral cerebral palsy in August 2018.
About the Practice at a Glance
NAME OF INNOVATIVE PRACTICE: Mirrorable
ORGANIZATION: Fightthestroke
COUNTRY OF IMPLEMENTATION: Italy
Facts and Figures
– A recent clinical trial demonstrated that Mirrorable online users realized a 26 per cent improvement in motor function.
– The Mirrorable model costs approximately half as much as conventional therapy.
– The Mirrorable ecosystem can be easily replicable for other target groups, as adults who suffered a brain stroke.
Contact
Francesca Fedeli
francesca@fightthestroke.org
Fightthestroke Website
Links and Further Reading:
Mirrorable website
Mirrorable founders’ Ted Talk (video)
Mirrorable demo video
Jan 4, 2019
First published on ScienceDaily.com
In a medical records analysis of information gathered on more than 6,000 people, Johns Hopkins Medicine researchers conclude that simply asking older adult patients about their weight history at ages 20 and 40 could provide real value to clinicians in their efforts to predict patients’ future risk of heart failure, heart attacks or strokes.
In a report published Nov. 14 in the Journal of the American Heart Association, the investigators say the younger-weight question is potentially a cost-efficient, high-value “ask” likely to help physicians decide how to advise and treat their older patients, particularly now that many people change primary care physicians throughout their lives, and lifelong health records may not transfer. Asking this simple question about prior lifetime weights provided prognostic information about a person’s heart failure risk that was incremental to their measured weights at older ages and other measured traditional heart disease risk factors.
“We’ve known that the longer a person is obese, the more it becomes problematic by increasing their heart failure risk,” says Erin Michos, M.D., M.H.S., associate professor of medicine at the Johns Hopkins University School of Medicine. “That is why measuring a person’s weight at older ages may not tell the whole story about their risk. There’s now more evidence that newly obese people are in overall less danger. Our findings emphasize the importance of lifelong maintenance of a healthy weight, as greater cumulative weight from young adulthood is more risky to heart health.”
“We already routinely measure weights during a patient’s clinic visit to make health recommendations, but we think adding this low-tech question about their prior weight histories can further help direct clinical care,” she adds. “While we acknowledge that self-reported weight history is imperfect, at the very least, asking the question sparks patient reflection and self-motivation to get back to healthier weights from their younger ages.”
Heart attacks, strokes and other cardiovascular diseases remain the No. 1 killers of Americans. Heart failure, also known as congestive heart failure, is a condition marked by a gradual weakening and stiffening of the heart muscle, diminishing its ability to pump blood. Physicians routinely attempt to assess risks for heart disease and heart failure as patients age with measures of blood pressure, cholesterol, exercise levels, family history, diet and weight, Michos noted. Although a single weight measurement in an older adult is helpful, she says, weight history is even more informative, and the new study was in part designed to identify a practical way of getting it that would be considered informative enough to add to clinical care.
For the study, the researchers used data already gathered on 6,437 participants in the Multi-Ethnic Study of Atherosclerosis (MESA) recruited between 2000 and 2002 who were age 45 to 84 at time of enrollment into the study. Participants were followed an average of 13 years, and lived in six U.S. communities: Baltimore, Maryland; Chicago, Illinois; Forsyth County, North Carolina; New York City, New York; Los Angeles County, California; and St. Paul, Minnesota. On average, they were 62 years old at the study’s start. Almost 53 percent of the participants were women. About 39 percent of participants were white, more than 26 percent were African-American, 22 percent were Hispanic and a little more than 12 percent were Chinese-American.
Each participant filled out a survey that reported their weight history at age 20 and 40. Their weights were further tracked during the study period using measurements from a standardized scale over five different in-person visits. All weights were converted to body mass indexes (BMI) by dividing the weight by the square of height. A BMI less than 25 kilograms per meter squared was considered normal, while a BMI between 25 and 30 was considered overweight, and 30 and above was considered obese.
By the end of all participants’ last visit, 290 people had experienced heart failure, and 828 experienced cardiovascular disease events such as heart attacks, stroke and or death as determined by participant and family interviews and patient medical records.
As expected, Michos says, the standard measured weights taken at clinic visits during the 13-year study period were associated with later heart failure risk, with a 34 percent increased likelihood of heart failure for every 5 kilograms per meters squared increase in BMI, after accounting for other established heart disease risk factors such as age, smoking, physical activity, blood pressure and diabetes. But then her team found that even after taking into account these current measured weights at older ages, that having a self-reported history of obesity at age 20 (144 participants) was associated with a more than threefold risk of heart failure, and having a history of being obese at age 40 (716 participants) doubled the risk compared with people who had a BMI in the normal range at those ages.
“Our study confirms that maintaining a normal weight over the lifespan is the most ideal, and that when and for how long a person becomes obese are highly informative in assessing heart disease risk in older adults,” says Michos.
Michos cautioned that the new study was designed to look at associations between self-reported lifetime weights and heart disease risk over time, and not determine cause and effect or attempt to determine the accuracy of patients’ recall of their weight at young ages. Patient self-reporting can result in bias or imperfect memory, but the researchers believe most older adults have reasonably accurate recall of their younger adult weight. Their study findings suggest that even with these known limitations of weight recall, that simply asking about weight history was helpful in risk assessment. Right now, clinicians just don’t routinely ask about a person’s weights at key life points such as young- and mid-adulthood, Michos says, but it is so easy to do.
Michos says that we need to investigate how we can incorporate this ask (about lifetime weight recall) into electronic health records and into clinical practice.
About 1 in 3 deaths in the U.S. are due to heart disease, according to the American Heart Association. About 92 million American adults are living with some form of cardiovascular disease. About 5.7 million people in the U.S. live with heart failure, and more than half a million are diagnosed each year. More than half of people with heart failure will die within five years of diagnosis, according to the Centers for Disease Control and Prevention.
Story Source:
Johns Hopkins Medicine. “Your weight history may predict your heart failure risk: Low-tech reporting on earlier weights may guide clinical care.” ScienceDaily. ScienceDaily, 12 December 2018. <www.sciencedaily.com/releases/2018/12/181212093327.htm>.
