Since 2018, SAFE has participated in the Angels Initiative project providing patient perspective and enabling better patient-doctor communication. The project was so far realised in two phases. In the first phase the patient-centered, evidence-based brochures were translated to 13 languages and distributed in 12 countries, in designated stroke hospitals. In the second phase, conducted in late 2019 and early 2020, the project expanded to include even more countries and languages, increasing reach of these information in 15 European countries.
“It’s proven great to have these books and be able to use them as a tool for raising awareness of stroke prevention and treatment among patients, caregivers and people interested in stroke.”
President of the Croatian Stroke Society / Hrvatsko društvo za prevenciju moždanog udara
The brochures were differently formatted, this time being comprised in one booklet containing five types of stroke-related information. SAFE is proud to report that in the second phase 17 out of 34 its stroke support member organisations participated, making these materials available in 14 languages: Spanish, Serbian, Croatian, Catalan, Georgian, Ukrainian, Greek (Greece), Slovakian, Polish, Turkish, Macedonian, Greek (Cyprus), French, Czech and Hungarian.
“International collaboration of SSOs obviously implies exchange of experience and sharing best examples of materials, ideas, projects, etc. From this point preparing of the set of translated and localized education materials on stroke for patients and general population, initially elaborated by one of the leading SSOs in the world, UK Stroke Association, translated to local languages by national SSOs in several countries with support of SAFE and Angels Initiative, is a great experience, showing all of us that we are not alone, and inspiring us for further own efforts.”
Director of education, research and publishing projects
Ukrainian Anti-Stroke Association
The project was a great success in all countries where it was presented, clearly demonstrating that there was a gap in availability of stroke-related information among patients. Subsequently, it also brought additional quality to doctor-patient communication in hospitals where patients received these books.
The information provided in the books were kindly provided by the Stroke Association UK*and then translated to all project languages, applying the information standard procedure for the translation.
The original brochures are in English language and you can access their original content by following the links below:
Transient ischaemic attack
Next steps after stroke
Supporting a stroke survivor
When you have a stroke
How to reduce your risk
“The Angels project and the brochures are helping us to connect patient voices. I see in it the potential for a possible change in the healthcare system. It means in cooperation with Ministry of Health to set up guidelines which will contain uniform information, for what are patients after stroke entitled in social, physiotherapy or speech therapy sphere.”
Alžbeta Husarovič, President of Porazka.sk
On this link you can find PDF versions in following languages: Greek (for Greece and Cyprus), Hungarian, Czech, Croatian, Serbian, Macedonian, Turkish, Ukrainian, Georgian, Spanish, Catalan, Hungarian, Polish, Slovakian and French.SAFE Angels Patient Books for Download
To access the last year’s version of books in Latvian language, please click here.
“SAFE Angels books offer consistency of messages, availability of the required information and ability to share this information. Apart from health-related information, they offer plenty of beneficial advices and solutions for obstacles that patients and their caregivers face every day. After using these books for two years, we think they have helped patients to improve their knowledge, compliance to treatment, self-confidence and self management after stroke.”
Maja Bozinovska Smiceska
President of the Macedonian Stroke Association “Mozočen Udar”
SAFE would like to thank and acknowledge support received from our member stroke support organisations who participated in this project:
Serbia: Serbian Stroke Association
Croatia: Croatian Stroke Society
Spain (Catalonia): Fundacio Ictus
Spain: Federacion Espanola de Ictus
Czech Republic: Sdruzeni SMP
Czech Republic: Cerebrum
Georgia: Medical Foundation Mkurnali
Ukraine: Victory over Stroke
Ukraine: Ukrainian Anti-Stroke Association
Hungary: Stroke Liga Nemzeti
Poland: Fundacja Udaru Mozgu
Macedonia: Macedonian Stroke Association “Mozočen Udar”
France: France AVC
Cyprus: Cyprus Stroke Association
Luxembourg: Bletz ASBL
About the joint SAFE Angels Initiative project
The mission of Boehringer Ingelheim’s (BI’s) Angels Initiative is to increase the number of patients who can be treated in stroke-ready hospitals and to optimise the quality of treatment in all existing stroke centres. The Stroke Alliance for Europe (SAFE) has partnered with BI to support this ambitious project, adding an important dimension: the patient perspective. SAFE’s involvement means patient-focused information will be available to patients and their carers as soon as they arrive in all stroke units.
About Angels Initiative
Every 30 minutes a stroke patient who could have been saved, dies or is permanently disabled, because they were treated in the wrong hospital.
Angels Initiative is building a global community of stroke centres and stroke-ready hospitals, working every day to improve the quality of treatment for every stroke patient.
In 2017, the Angels Initiative was endorsed by European Stroke Organisation (ESO), the largest European organisation of stroke professionals.
For more information about Angels Initiative, please visit www.angels-initiative.com