SAFE’s Director, Arlene Wilkie will be joining the Advocacy Exchange virtual event at 4-6pm EDT.
The event is the largest cross-disease advocacy initiative in healthcare, giving access to patient organisations and free resources from over 50 organisations. Hosted by @GRYTHealth and @BristolMyersSquibb, register at TheAdvocacyExchange.com. #AdvocacyExchange
We are delighted to let you know that the third in our series of free webinars on Life After Stroke: caring for the caregiver, is now open for registration https://bit.ly/3xucXqx
The session looks at some of the challenging aspects posed to informal carers, and the impact that caring for a stroke survivor might have on their lives. It will also cover predictors of wellbeing and resilience in carers and good practice examples of carer support and how to implement them.
If you missed our other events in the Live After Stroke series of webinar, you can now catch up on demand at elasf.org
Heart disease is the #1 killer of women. This is under-recognised with adverse consequences for the #diagnosis & treatment of women. Join our Inspire #Advocacy Speaker Series with Amy Friedrich-Karnik, @WomenHeartOrg, & Cecily Foster, WomenHeart Champion, on July 7! https://bit.ly/3zN6Wqo
A one-hour webinar on 1 July, 11.00 BST/12.00 CEST, Bridging the distance – creating stroke support during COVID-19, will look at how international stroke support organisations have delivered services during the pandemic.
Join the panel, Kelvin Leong, stroke survivor, Shamala Thilarajah, Singapore National Stroke Association and Beth Scrimshaw, Stroke Association in the UK who will share learnings and insights about delivering online support.
This interactive event will be of interest to those working in discharge planning, community/primary healthcare settings, and patient advocacy.
Register here
The official language of SAFE is English although for many members this remains a challenge. Beyond SAFE, the language barrier inevitably limits the opportunity to engage and influence others who otherwise might respond to the communication.
We are thankful to our sponsor Boehringer Ingelheim for funding the translations to French, Portuguese, Russian, Polish and Spanish. At the same time, we would like to show our gratitude and appreciation to the Greek support organisation Hellenic Alliance/ Action for Stroke (HAAS), the Finnish Brain Association, the Norwegian SSO Norsk forening for slagrammede, the Turkish stroke support organisation BEYINDER, Croatian Stroke Society and the Ukrainian stroke support organisation Українська асоціація боротьби з інсультом for independently translating this important document at their own cost.
The popular version of the Stroke Action Plan for Europe, initially generously supported by companies Boehringer Ingelheim, BMS-Pfizer Alliance and Ipsen, is a vital document that outlines key recommendations from seven domains covering the stroke care pathway from Prevention to Life After Stroke.
The original Stroke Action Plan is in English, and we are expecting that translating it to additional languages would significantly increase its reach throughout Europe. This has a paramount importance for SAFE members’ future advocacy work and influencing of European healthcare policy-makers.
In addition to the activities mentioned above, SAFE does have plans for significant dissemination of the Action Plan in order to encourage its implementation. For more information please click here
You can access the PDF version in each of the languages by clicking on their photo below, including the English version for your reference.
SAFE has signed a joint statement (16 June 2021) calling on the EU to develop a comprehensive EU plan on cardiovascular disease (CVD). Strokes and heart attacks are cardiovascular events and are the leading cause of death in Europe.
The signatory organisations jointly call for a comprehensive EU policy response to address the increasing burden of cardiovascular disease and ensure that citizens can live longer, healthier lives and enable them to continue to contribute to society and the economy.
After a decline in mortality over the past several decades, the numbers are rising again. CVD is linked to health inequalities, be it between geographies or be it by gender. Impacting people of all ages and is set to increase as Europe’s population is ageing.
The COVID-19 pandemic has worsened the situation, affecting diagnosis and treatment.
Through an EU-wide CVD Plan, ambitious incentives and measures should be implemented across prevention, screening, early detection, access to treatment and rehabilitation to keep people in good health and optimise their quality of life. This will strengthen the resilience at the population level, whilst making efficient use of healthcare resources.
The signatory organisations jointly call on EU decision-makers to develop an EU Plan on CVD to ensure that European citizens live longer, healthier lives – regardless of their gender, or where they were born or live in the EU – and enable them contributing to society and the economy. Thus, ensure more Health Equity across the EU.
The undersigned organisations stand ready to collaborate with EU institutions and national governments to develop and implement such a plan to address the burden of cardiovascular disease.
LIST OF SIGNATORIES:
International Association of Mutual Benefit Societies (AIM)
European Trade Association representing the medical imaging, radiotherapy, health ICT and electromedical industries (COCIR)
European Chronic Disease Alliance (ECDA)
European Federation of Pharmaceutical Industries Associations (EFPIA)
European Heart Network (EHN)
European Kidney Health Alliance (EKHA)
European Society of Cardiology (ESC)
European Confederation of Pharmaceuticals Entrepreneurs (EUCOPE)
The European FH Patient Network (FH Europe)
Global Heart Hub (GHH)
European Trade Association representing the medical technology industries including diagnostics, medical devices, and digital health (MedTech Europe)
Stroke Alliance for Europe (SAFE)
Read the joint statement here.
