Aug 11, 2017
In the largest functional brain imaging study to date, the Amen Clinics (Newport Beach, CA) compared 46,034 brain SPECT (single photon emission computed tomography) imaging studies provided by nine clinics, quantifying differences between the brains of men and women. The study is published in the Journal of Alzheimer’s Disease.
Lead author, psychiatrist Daniel G. Amen, MD, founder of Amen Clinics, Inc., commented, “This is a very important study to help understand gender-based brain differences. The quantifiable differences we identified between men and women are important for understanding gender-based risk for brain disorders such as Alzheimer’s disease. Using functional neuroimaging tools, such as SPECT, are essential to developing precision medicine brain treatments in the future.” (more…)
Aug 3, 2017
Is being born in states with high stroke mortality associated with dementia risk in a group of individuals who eventually all lived outside those states?
A new article published by JAMA Neurology reports the results of a study that examined that question in a group of 7,423 members of the integrated health care delivery system Kaiser Permanente Northern California.
A band of states in the southern United States is known as the Stroke Belt because living there has been associated with increased risk of a number of conditions, including high blood pressure, diabetes, stroke and cognitive impairment. (more…)
Jul 26, 2017
Article by Jon Barrick, SAFE President
Published in Oruen – The CNS Journal – Volume 3 Issue 1 – July 2017
Oruen – The CNS Journal – Volume 3 Issue 1 – July 2017
“Time is brain” is a concept that perfectly encapsulates the need for swift action when stroke strikes. The sooner stroke symptoms are realised, the sooner the person gets the care they need, the greater the chances for survival and life with fewer disabilities.
What happens in Europe is that a person who has a stroke for example in Catalonia, Spain, and a person who has a stroke in Bulgaria will not receive the same care, which influences their chances of survival.
Stroke Alliance for Europe (SAFE) is a non-profit-making organisation that is a coalition currently of 30 Stroke Support Organisations from across Europe. These Stroke Support Organisations (SSO’s) mutual goal is to drive stroke prevention and care up the European and national political agendas, preventing stroke through education, and supporting stroke care and patient centered research. SAFE aims to raise awareness of the major impact stroke has on individuals, and on the health and economy of Europe.
The Burden of Stroke in Europe Report, commissioned by SAFE, conducted by King’s College in London and published in May 2017, has projected that between 2015 and 2035, overall there will be a 34% increase in the total number of stroke events in the EU (from 613,148 in 2015 to 819,771 in 2035). This means that stroke prevention should be a high priority for governments and health care systems. The research findings indicate that stroke is widely undertreated, with the risk factors not being controlled and treated the way they should be.
The Report painted a gloomy picture of the present situation when it comes to stroke and how much we know about the quality and extent of stroke care, which was variable across countries, but also indicated that public awareness campaigns were not regularly occurring. In many European countries people, in general, do not know what causes stroke and how to prevent it. For most of them, stroke is still an act of God, for which mistakenly they believe there is no treatment. Risk factors such as High Blood pressure and high cholesterol, Atrial Fibrillation, diet and lack of exercise can all be combatted.
When it comes to the acute phase, we know that stroke units save lives and improve outcomes, but we don’t have a Europe-wide applied pursuit of the essential elements of stroke unit care. Despite over thirty years of evidence showing the difference stroke units make and despite their inclusion in European and national guidelines, it is estimated that only about 30% of stroke patients receive stroke unit care across Europe. This figure masks startling inequalities between countries, and in particular the East-West divide in stroke unit provision.
Please read the full article here.
Jul 22, 2017
NEWS RELEASE
Saturday, July 22nd is World Brain Day. Organisers of the Together Under the Umbrella campaign are inviting the public to share a picture of themselves on the day, using the hashtag #UnderTheUmbrella, to help raise awareness of brain disorders.
Last year’s World Brain Day saw hundreds of pictures shared around the world – selfies, groups of family and friends, medical professionals and patient groups, all stood under umbrellas in support of brain disorder awareness. A wide variety of disease areas were highlighted in these messages including MS, Parkinsons, headache, mental health, chronic pain, ME and rare diseases.
The campaign is an initiative of the European Federation of Neurological Associations (EFNA), who bring together European umbrella organisations of neurological patient advocacy groups.
The umbrella is used as a symbol of unity by the campaign – bringing the many neurological conditions together. To find out more about the campaign visit www.undertheumbrella.eu and follow @UnderUmbrellaEU on social media.
We’re #UnderTheUmbrella for #WorldBrainDay! Join us to raise
#BrainDisorder & #[InsertYourDiseaseArea] awareness
About Together Under the Umbrella
Developed in line with a strategy to advocate for support of patient-led campaigns to educate, eradicate stigma and raise awareness of neurological and chronic pain disorders, Together Under the Umbrella aims:
• To raise awareness of the prevalence of neurological disorders
• To educate society on the range of disorders which are ‘neurological’
• To ‘brand the brain’ by grouping these disorders under a common symbol to create a unified and identifiable
‘brand’
• To provide a platform for European and national patient neurology groups to promote and profile their work
in the areas of advocacy, communications and fundraising using the hashtag #UnderTheUmbrella
About Neurological Disorders
• Each year, approximately 1 in 3 Europeans are affected by a brain disorder and 1 in 5 by chronic pain.
• This includes 153 million people suffering migraine or other disabling headaches, 200 million musculoskeletal
disorders, 100 million people experiencing chronic pain, 8 million living with stroke, 6 million with dementia
and 4 million with traumatic brain injury.
• The World Health Organisation estimates that brain disorders cause one-third of the burden of all diseases.
• €295 billion a year is spent on healthcare for neurological and brain disorders, making them ‘the number one
economic challenge for European health care, now and in the future’.
About the European Federation of Neurological Associations (EFNA):
The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology, including the European Academy of Neurology (EAN), in what has been termed a ‘Partnership for Progress’.
EFNA’s aims are:
• To improve the quality of life of people with neurological disorders, their families and carers
• To promote rapid and accurate diagnosis, appropriate treatment, rehabilitation and care for people with
neurological illnesses
• To promote better access to information which is accurate and easy to understand
• To promote public awareness and understanding of neurological conditions
• To eliminate prejudice and stigma associated with neurological disorders
• To increase priority given to neurology by policy and decision makers and by health care providers.
EFNA currently has a membership of 18 associations, based in countries Europe-wide.
Jul 18, 2017
During the period between 31st May and 5th July 2017, SAFE organised three Regional Conferences. These conferences were held in Lisbon, Riga and Berlin, having representatives from 5 country clusters, with 29 stroke support organisations from 26 European countries.
All three conferences were fully supported by SAFE’s long-term industry partner, pharmaceutical company Boehringer Ingelheim.
SAFE Regional Conference, Berlin, Germany
(more…)
Jul 17, 2017
After having taken many regulatory hurdles, the trial PRECIOUS is now coming up to speed!
PRECIOUS has full approval in Estonia, Germany, Hungary, Italy, Norway, the Netherlands, and the UK. Poland and Greece are almost there! A total number of 16 sites across Europe have been initiated and we expect this number to increase to 80 by the end of this year. (more…)
