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Life After Stroke

Welcome to the info page about the first European Life After Stroke Forum – #ELASF

 

Life after stroke – The present challenges

Research and medical attention into the areas of primary prevention and intervention at the point of stroke occurring is an understandable priority. Yet survivors of stroke on discharge from a largely medicalised pathway enter a world where support is usually unclearly defined, often fragmented or non-existent, and where cultural expectations[1] can dramatically impact quality of life and any success of ongoing recovery.

National Stoke Strategy, Department of Health (England), 2007

Survivors of stroke and their loved ones may face decades of existence in which they are largely reliant on self-management. The survivor in their new post stroke life face problems caused by stroke related disabilities, often complicated by co-morbidities, and additional issues related to their internal and external environment, self-care and self-esteem, role activity[2], finance, transport, housing, social integration and so on.

These issues are compounded by the current situation whereby little research is directed to these areas and the voice of the people surviving the stroke experience is very often not articulated. It is assumed that those in powerful positions within the medical area of the pathway have relevant knowledge that extends beyond the hospital experience.

It is now apparent to a wide range of people that there is a need to promote research into all aspects of life after stroke, and to construct mechanisms of support around the articulated needs and wants of stroke survivors and their families. This sentiment was articulated in the 2007 English National Stroke strategy and in the critically important Stroke Action Plan for Europe published in 2018. However, few opportunities exist regarding conferences, workshops, and shared networking events for advocates and researchers in this neglected but vital area of care.

SAFE: Stepping in to make a change

Life after stroke is a key priority within SAFE’s overall strategy, as we firmly believe that every step in the stroke care pathway matters equally. Our Alliance has decided that it was about time we bring this topic forward and position the life after stroke as one of top priorities for European policy makers.

SAFE is organising the first European Life After Stroke Forum on 20 November 2020 in Barcelona, Spain.

This first #ELASF will be driven by the need to implement the Stroke Action Plan for Europe and create a broader network of stakeholders involved in professionally researching, advocating and providing evidence for improved stroke care.

In the upcoming months we will share with you more information about the work of our Scientific Committee, the registration and delegate fees, deadlines for abstracts submission and all other relevant materials.

For now, please put 20 November 2020 in your calendar and stay tuned for more information that will follow.

We hope to welcome you to Barcelona,

SAFE team

 

[1] Cultural expectations such as” family should look after the person, its up to family to find the finance for support, ,disability is a stigma, and people should stay at home , why should people make adjustments which may be expensive to enable survivors to participate, etc”
[2] Role activity refers to being a worker, a spouse, a parent, a friend etc.