A debate on stroke is emerging in Brussels for the first time, thanks to the joint mobilisation of physicians’ association ESO and the patients’ association Stroke Alliance for Europe – SAFE over the past year. This mobilisation started off with a joint letter sent on November 2016, calling on the European Commission to play a greater role in ensuring access to the current stroke management standards and facilitating cross-border cooperation between member states.
In order to preserve this momentum and garner political support, ESO and MEP Aldo Patriciello have decided to organise an event within the European Parliament, focusing on innovation in stroke treatment and access to it. The primary objective was to bring together representatives from ESO and the EU institutions, physicians and patients with the aim of discussing how to ensure equal access to the current stroke management standards and reduce inequalities within Europe along the whole patient’s care pathway. (more…)
People who survive a stroke or a mini-stroke without early complications have an increased risk of death, another stroke or heart attack (myocardial infarction) for at least 5 years following the initial stroke, found a new study published in CMAJ (Canadian Medical Association Journal)
“There is a real need to maintain risk reduction strategies, medical support and healthy lifestyle choices over the long-term, even years after a mild initial event,” said senior author Dr. Richard Swartz, a neurologist at Sunnybrook Health Sciences Centre, Toronto, Ontario. (more…)
Saturday, July 22nd is World Brain Day. Organisers of the Together Under the Umbrella campaign are inviting the public to share a picture of themselves on the day, using the hashtag #UnderTheUmbrella, to help raise awareness of brain disorders.
Last year’s World Brain Day saw hundreds of pictures shared around the world – selfies, groups of family and friends, medical professionals and patient groups, all stood under umbrellas in support of brain disorder awareness. A wide variety of disease areas were highlighted in these messages including MS, Parkinsons, headache, mental health, chronic pain, ME and rare diseases.
The campaign is an initiative of the European Federation of Neurological Associations (EFNA), who bring together European umbrella organisations of neurological patient advocacy groups.
The umbrella is used as a symbol of unity by the campaign – bringing the many neurological conditions together. To find out more about the campaign visit www.undertheumbrella.eu and follow @UnderUmbrellaEU on social media.
We’re #UnderTheUmbrella for #WorldBrainDay! Join us to raise
#BrainDisorder & #[InsertYourDiseaseArea] awareness
About Together Under the Umbrella
Developed in line with a strategy to advocate for support of patient-led campaigns to educate, eradicate stigma and raise awareness of neurological and chronic pain disorders, Together Under the Umbrella aims:
• To raise awareness of the prevalence of neurological disorders
• To educate society on the range of disorders which are ‘neurological’
• To ‘brand the brain’ by grouping these disorders under a common symbol to create a unified and identifiable
• To provide a platform for European and national patient neurology groups to promote and profile their work
in the areas of advocacy, communications and fundraising using the hashtag #UnderTheUmbrella
About Neurological Disorders
• Each year, approximately 1 in 3 Europeans are affected by a brain disorder and 1 in 5 by chronic pain.
• This includes 153 million people suffering migraine or other disabling headaches, 200 million musculoskeletal
disorders, 100 million people experiencing chronic pain, 8 million living with stroke, 6 million with dementia
and 4 million with traumatic brain injury.
• The World Health Organisation estimates that brain disorders cause one-third of the burden of all diseases.
• €295 billion a year is spent on healthcare for neurological and brain disorders, making them ‘the number one
economic challenge for European health care, now and in the future’.
About the European Federation of Neurological Associations (EFNA):
The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology, including the European Academy of Neurology (EAN), in what has been termed a ‘Partnership for Progress’.
EFNA’s aims are:
• To improve the quality of life of people with neurological disorders, their families and carers
• To promote rapid and accurate diagnosis, appropriate treatment, rehabilitation and care for people with
• To promote better access to information which is accurate and easy to understand
• To promote public awareness and understanding of neurological conditions
• To eliminate prejudice and stigma associated with neurological disorders
• To increase priority given to neurology by policy and decision makers and by health care providers.
EFNA currently has a membership of 18 associations, based in countries Europe-wide.
During the period between 31st May and 5th July 2017, SAFE organised three Regional Conferences. These conferences were held in Lisbon, Riga and Berlin, having representatives from 5 country clusters, with 29 stroke support organisations from 26 European countries.
All three conferences were fully supported by SAFE’s long-term industry partner, pharmaceutical company Boehringer Ingelheim.
SAFE Regional Conference, Berlin, Germany
Prague, 16th May 2017– Stroke Alliance for Europe and European Stroke Organisation signed the Memorandum of Understanding in Prague at the first day of the ESOC 2017.
-This is an historic moment that unites both patient organisations and professionals in mutual endeavors to improve stroke care across Europe, said Jon Barrick, the President of SAFE.
In her video message, Valeria Caso, the President of ESO stressed out that this step was very important.
By joining forces, SAFE and ESO are now creating a strong alliance among patients, care-givers and healthcare professionals, including researchers.
ESO President elect Bart Van Der Warp gave a short speech at the event, on behalf of ESO.
New partnership signed and sealed: SAFE and ESO fighting #stroke together. SAFE President Jon Barrick and ESO President elect Bart Van Der Warp
Following the successful launch of the Burden of Stroke Report in EU Parliament, SAFE SSOs continue with their other activities at national level.
Plans for May 2017 activities in SSOs
Apart from the Burden of Stroke related communication, each SSO is having national plans for raising awareness of stroke in May. Please click here to see the plan of their national activities.
You can download a Burden of Stroke press release in following languages:
The Burden of Stroke Report was made possible through educational grants from the following organisations