SAFE and the European Stroke Organisation held its first online working session to implement the Stroke Action Plan for Europe 2018-2030. Over 80 representativesfrom 52 participating countries were introduced tothe roadmap of actions for the upcoming year of 2021.
Six speakers of international renown set the framework for the meeting, reporting on tools related to the Stroke Action Plan Europe that are already successfully implemented on a national level, such as the Danish Stroke Registry and the Swiss Certification Process.
Valeria Caso from Italygave an overview of aspects to consider when involving governmental bodies. “A strong alliance between physicians and the national patient organisations is key when approaching politicians. It helps to underline the fact that stroke and stroke care are issues affecting the whole population and ultimately will lead to long-term improvements in the health care system”, she highlighted.
National coordinators worked in four different groups to define future tasks and vividly discussed how to involve health authorities as well as patients on a local level.
The next implementation milestone for this major pan-European initiative will be the finalization of the official Stroke Action Plan Europe Declaration to manifest the commitment of each country and institution involved. By signing the Declaration, the national representatives and authorities underline their determination to achieve improvement throughout the entire chain of care in stroke, including primary prevention, organised stroke services, management of acute stroke, secondary prevention, rehabilitation, evaluation of outcomes and quality improvement, as well as life after stroke.
“As an official document, the declaration will strongly support the cause and lead the way for the national coordinators and Stroke Support Organisations to approach the national health authorities in a joint effort”, Hanne Christensen, Chair of the SAP-E Steering Committee emphasised.
To monitor and facilitate change, twelve measurable key performance indicators were defined which reflect each domain of the chain of care. Results will be reviewed on an annual basis.
The first implementation phase includes two further working sessions, scheduled for December and January.
The World Stroke Organsiation is running a three part series titled ‘Maintaining Stroke as a Priority’. In this series stroke support organisations from the Americas, Europe and Asia/Oceania have highlighted the impact of COVID 19 on people with lived experience of stroke across the stroke pathway, discussed the responses and innovations of stroke support organisations and signposted to patient education resources available globally. Join them for the last in their Maintaining Stroke as a Priority webinar series, 14:00 GMT/UK time, 09:00 EDT time, on Wednesday 8 July with:
Juliet Bouverie (Stroke Association UK): Discharge/transitioning home
Patrice Lindsay (Heart and Stroke Canada): Secondary prevention
Today is World Stroke Day, October 29th. Though stroke may feel isolating, there are millions of survivors in the world. Stroke recovery is a community effort, and there needs to be a more clearly defined pathway from prevention to rehabilitation.
Taking that into account, SAFE is proud to announce the publishing of the Stroke Action Plan for Europe 2018-2030. This document is a result of collaborative work between SAFE and European Stroke Organisation (ESO), being an intersection and a point of confluence for large experiences coming from SAFE’s members, stroke survivors and patient advocates from one side and medical experts, specialised in stroke and stroke related research.
“With this great collaboration we are trying to make sure more attention is paid to the whole stroke care pathway. Fatigue, long-term pain, finance, work or unemployment, relationships, aphasia- these things are usually not in front of mind for many medics or politicians and healthcare decision makers. Therefore, the addition of Life After Stroke domain as one of the Stroke Action Plan’s priorities is an important step forward. SAFE is working with ESO to ensure that we jointly engage with politicians and decision makers until the whole action plan is being implemented” said Jon Barrick, SAFE President.
This year, around 610,000 people in the European Union will have a stroke, and, although the figures are patchy, at least 170,000 people in non-EU European countries will have one. That is more than one stroke a minute. Their stroke could be devastating – leading to death or life-long disability, shattering their lives and those of their loved ones. Those who survive their stroke will join the millions of stroke survivors across Europe who live with the health, social and financial impacts.
“Long term commitment and attention to the needs and rights of stroke survivors and their caregivers will contribute to better health and wellbeing, outcomes, increase independence and reduce demand on healthcare, social and welfare systems” concluded Barrick.
The popular version of the Stroke Action Plan for Europe 2018-2030 can now be downloaded from HERE.
The scientific version of this document is also available starting from today and can be downloaded from the following LINK.
Stroke clubs and groups provide essential long-term peer support to stroke survivors, carers, family and friends. They provide an opportunity for those who have been affected by stroke to rediscover previous skills, learn new skills, regain confidence, increase independence and socialise with other individuals who have had similar experiences.
Stroke Association has received funding for our Hand in Hand peer support programme. This is an ambitious, five-year project enabling us to scale our experience, expertise and knowledge of peer support for the benefit of local stroke communities.
As part of this programme, we would like to share some of our experience, expertise and knowledge of peer support with other SAFE members, and to hear about your experiences and insights in delivering peer support. We will hold a webinar on Monday26th March 2018, 11am BST, 12pm CET(more…)
Brussels, 20th December 2017: The mission of Boehringer Ingelheim’s (BI’s) Angels Initiative is to increase the number of patients who can be treated in stroke-ready hospitals and to optimise the quality of treatment in all existing stroke centres. The Stroke Alliance for Europe (SAFE) has partnered with BI to support this ambitious project and will add an important dimension by bringing the patient perspective. SAFE’s involvement will mean patient-focused information will be available to patients and their carers as soon as they arrive in all stroke units.
-Information on the stroke care pathway is crucial for stroke survivors and their carers both while they are in hospital and in the following months, says Jon Barrick, the President of SAFE. With SAFE joining Angels Initiative we will be making information available to them in the hospitals. The patient-focused materials will include a list of national, regional and local stroke support organisations with their contact details in order that patients and carers can access further support in the months and years following their stroke. (more…)
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