Written by Sarah Belson, published on worldstrokeorganization.blogspot.com

We want to make sure that the voices of people affected by stroke are heard throughout the Congress in an exhibition of stroke survivor, family and caregiver testimonials.

The 11th World Stroke Congress will focus on the latest developments in stroke prevention, acute management and restorative care after stroke. Reducing the burden of stroke on people with lived experience and their family and care givers drives everything the World Stroke Organization does.

In previous years the visibility of people with lived experience of stroke has been promoted through art exhibitions, both physical and online, and a hobbies ebook.

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The Stroke Action Plan for Europe 2018-2030 was launched today in the EU Parliament within the 2nd Stroke Summit.

Last year, in May 2017, SAFE launched the Burden of Stroke Report which unveiled shocking disparities between and within European countries along the entire stroke care pathway. In order to take action, SAFE and the European Stroke Organisation (ESO) decided to formalise their partnership which has led, after extensive consultation and tireless work, to the creation of the Stroke Action Plan for Europe 2018-2030.

This document sets important targets covering seven key pillars, from primary prevention to life after stroke. The report was launched today at the 2nd Stroke Summit in the European Parliament in front of around 70 key stakeholders including patients, healthcare professionals and policy-makers. The event was co-hosted by MEP Elena Gentile (S&D, IT), who showed her support to stroke survivors and stroke-related issues across Europe.

All the speakers welcomed the Stroke Action Plan and saluted the effort made by SAFE and ESO in making the Stroke Action Plan for Europe possible. It provides a clear road map and outlines recommendations and targets for 2030 so that all relevant stakeholders take action to improve the stroke care pathway and reverse the current trends.

Currently, an increase of 34% in the absolute number of strokes is expected by 2035 in Europe, along with a 45% increase in the number of stroke deaths, and a 25% increase in the number of survivors living with the long-lasting effects of stroke. Action needs to be taken to prevent stroke more efficiently, provide timely and adequate treatment and rehabilitation to those who need it, and last but not the least, to improve the lives of stroke survivors and their families across Europe by providing the right level of support in their Life After Stroke.

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Building on the preceding Helsingborg Declarations of 1995 and 2006, the European Stroke Action Plan was launched today at ESOC 2018. It creates an aspirational framework to drive healthcare policy, research priorities, local stroke management and patient-focused care to meet the need demonstrated in the ESO/SAFE Burden of Stroke report, with €45 billion direct and indirect healthcare costs each year, a 34% increase in strokes by the year 2035 due to the ageing population, and huge variations in the level of stroke care available across Europe.

Stroke Action Plan Chair, Prof Bo Norrving, said: “Resources for stroke do not match the societal impact and burden of the condition. ESO has joined forces with SAFE to define the priorities for stroke care and research across Europe over the next decade.”

List of people involved in the Stroke Action Plan for Europe project: A real testament of collaboration between SAFE and ESO

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WAKE-UP trial has a positive result!

WAKE-UP has provided a new treatment option for stroke patients if it is not known when their stroke started.

Up to 20 per cent of stroke patients wake up in the morning with stroke symptoms. This means that the time when their stroke started is unknown and so they are not routinely eligible for clot-busting treatment (thrombolysis) with drugs such as as alteplase, which is only approved to be used within 4.5 hours after the start of stroke symptoms. Every year about two million patients have a stroke in the EU, including approximately 400.000 patients with ‘wake-up- stroke’ or who otherwise have unknown time of symptom onset.

Now, the WAKE-UP study has revealed for the first time that selecting patients for treatment based on what is shown in their MRI brain images can be used to decide if they get thrombolysis. By comparing different images from the MRI examination, clinicians can now deduce when a stroke is likely to have started, and whether a patient is likely to benefit from thrombolysis.

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Posted on Friday May 11, 2018 by The Foundry Healthcare

I am a child of immigration. Both my parents came to the UK for their education, and because of this the value and importance of education has been a strong influence in my life. I believe that education can equalise the playing field, it can transform the potential of anyone and can create real change. To me the Stroke Support Organisation Faculty Tool, SSOFT, incorporates these important aspects; equal access, increased potential and the means to change things for the better.

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Stroke Action Plan for Europe 2018-2030

Basel and Brussels, 11 May 2018 – Just one year after signing a Memorandum of Understanding, the European Stroke Organisation (ESO) and the Stroke Alliance for Europe (SAFE) are proud to present the “The Stroke Action Plan for Europe 2018-2030”, with the aim of significantly improving stroke care and Life after Stroke for the millions of people expected to have strokes over the next 12 years.

ESO and SAFE will present the Stroke Action Plan for Europe to the medical world for the first time in a joint session at ESOC in Gothenburg on Thursday, 17 May. In addition to speakers from ESO and SAFE, the World Health Organisation (WHO) perspective on Joining Forces in Combating Stroke in Europe will be presented.

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The Stroke Alliance for Europe (SAFE) and its members from 30 European countries are committed to raising awareness of stroke

Brussels, 8th May 2018- This May, SAFE and its members have many activities to be proud of. We have managed to successfully complete a joint project with the European Stroke Organisation (ESO), the Stroke Action Plan for Europe 2018-2030.

The project will first be presented to the medical world at this year’s European Stroke Congress in Gothenburg, Sweden on Thursday, 17 May 2018.

After that, the main recommendations in the Stroke Action Plan will be launched to politicians and the public at the European Parliament on 23 May at the 2nd EU Stroke Summit.

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Jan Klein; Photo by Fraunhofer MEVIS

Stroke is a devastating disease leading to death and disability in large numbers of patients with massive social and economic impact. Intravenous thrombolysis with Alteplase is available as an effective and safe treatment of acute stroke if given within 4.5 hours of symptom onset.

However, in about 20% of acute stroke patients the time of symptom onset is unknown e.g. because symptoms are recognized when waking-up from sleep in the morning. This large group of patients is currently excluded from treatment with Alteplase only due to the missing information on the time of symptom onset.

WAKE-UP was a European multicentre investigator-initiated randomized placebo-controlled clinical trial of MRI based thrombolysis in acute stroke patients with unknown time of symptom onset.

In preparatory work, the WAKE-UP consortium developed an innovative approach of using brain MRI as surrogate marker of stroke lesion age which may be used to identify stroke patients likely to benefit from thrombolysis.

The final results of this trial will be presented at the press conference within ESOC 2018, in Gothenburg, Sweden, from 11:40 to 11:50 CET on Wednesday, 16 May.

As the revealing of the WAKE UP trial results approaches, SAFE used the opportunity to talk with the two scientists, Jan Klein from the Fraunhofer Institute for Medical Image Computing MEVIS, Bremen, Germany and Bastian Cheng, from School of Medicine and University Hospital Hamburg-Eppendorf to learn more about SONIA – the diagnostic imaging software that was developed during the course of the project.

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