EFNA needs people to get involved in the action to ensure access to employment for those affected by neurological disorders and chronic pain conditions.

efna-declarationWritten Declaration no. 0112/2016 was launched on October 24th. We now have until mid-January to ensure that over half of all Ministers of the European Parliament sign this Declaration, to ensure that it does not lapse.
Please help us to achieve this goal, which will benefit all those affected by neurological and chronic pain conditions across the EU.

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Stroke can happen to anyone at any age. World Stroke Day 2016 recognizes that although stroke is a complex medical issue, there are ways to significantly reduce its impact. We are calling everyone – individuals, families, communities, health professionals and governments – to join the fight against stroke. Let’s take action, drive awareness and push for better access to stroke treatments.

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Stroke is the number one cause of long term severe disability. Stroke survivors and their families are dependent on progress around neurological research and neurorehabilitation to ameliorate their disability. From a patient perspective, it makes no sense for stroke to be under cardiac disease. SAFE strongly supports the previous decision ICD-11 of having all types of strokes in a single block, and that this block should be placed in the nervous system diseases chapter.

Please read below the reaction of the most eminent stroke experts to the WHO ICD-11 Classification Committee to move the newly created cerebrovascular block from neurology to circulatory disease.

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NewYork-Presbyterian launched an innovative mobile stroke treatment unit in collaboration with Weill Cornell Medicine, Columbia University Medical Center and the Fire Department of New York, according to a press release.

The mobile stroke treatment unit (MSTU) is an emergency vehicle deployed through 911 that is specially equipped to bring immediate care to patients who may be having a stroke. The team contains two paramedics, a CT technologist and a neurologist. The unit also contains all equipment and medications necessary to diagnosis and treat a stroke, according to the release.

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Rachel Lutz | http://www.hcplive.com/

When stroke or lower extremity surgery patients have strong social and family support, they often spend less time in an inpatient rehabilitation facility, according to findings presented in the journal Physical Medicine and Rehabilitation.

Researchers from the University of Texas Medical Branch at Galveston conducted a retrospective cohort study of inpatient rehabilitation facility patients recovering from strokes or lower extremity surgeries in order to discover the patterns in shorter and longer than expected lengths of stay in these facilities. The researchers additionally wanted to examine the independent effects of social support on deviations from expected lengths of stay.

The study authors included 119,437 Medicare fee for service beneficiaries who were discharged from inpatient rehab centers in 2012 after their strokes, lower extremity fractures or lower extremity joint replacements.

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October 16th – 22nd is Invisible Disabilities Week.

Let’s make the invisible visible by supporting this initiative!
Invisible disability is a term that captures a whole spectrum of hidden symptoms or challenges that are primarily neurological in nature.

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Following the news about Sutter Lakeside Hospital’s from Lakeport (USA) staff hitting the streets to bring preventative education to Lake County, we spoke with Sandra Levy, SAFE Vice President.


Image credit: nursingschoolhub.com

Sutter Lakeside Hospital’s Project
Beginning Thursday, Oct. 13, hospital staff members pledged to educate five friends or family members about the signs and symptoms of stroke using key ring tabs printed with the “BE FAST” acronym. Over 300 staff members are participating in this project. Staff are participating in the grass roots education initiative as part of SLH’s yearly education fair, a time when staff refresh clinical skills through presentations and hands-on practice.
Sutter Lakeside Hospital serves as the only Certified Stroke Center in Lake County, and uses telemedicine technology to connect patients with top neurointerventionalists at California Pacific Medical Center in San Francisco.

According to Sandra Levy, it is hard to say if it could be generalized to other places, but it’s an interesting idea – very beneficial for Health Centre staff to maintain their contact with the community at large and feel responsible for preventing strokes to the best of their ability. Obviously it is also very beneficial for  the public, firstly because of the crucial knowledge they gain and the “buzz” around stroke in the area, leading to more awareness concerning stroke stroke in general and warning signs in particular. The credibility of such a program may be higher if those recruited to inform others were not allied with a private, profit making institution.

It would be interesting to try and create a pyramid for such an activity (having each person informed pass on  the information to 5 of his friends) or model of “crowd funding”  for recruiting volunteers to do so, said Sandra, adding that she would like to see more accuracy with Sutter Lakeside Hospital’s figures, as the “window” for emergency treatment preventing debilitating effects after a stroke is today generally accepted as 4,5 hours for patients eligible for thrombolytic therapy and 6 hours for those eligible for trombectomy.
Obviously the quicker one arrives at emergency care, the higher the chances of complete recovery, she concluded.

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