Stroke Action Plan for Europe

Stroke Action Plan for Europe

SAFE recently co-hosted the Stroke Action Plan for Europe ‘kick off’ meeting with the European Stroke Organisation. The Plan 2018-2030 outlines a set of key recommendations that if implemented would improve the care and outcomes for stroke patients and stroke survivors across the whole care pathway.

We brought together stroke support organisation and national scientific societies from all over Europe to discuss how the Plan could be implemented across all European countries. This is a very exciting step towards providing better support to stroke patents and stroke survivors. We look forward to sharing more information with you over the coming months.

Here is the press release for more information

We are hiring a communications officer

We are hiring a communications officer

Less than five days to apply! We are looking for a communications officer on a fixed term basis. This is an exciting opportunity to join the struggle against stroke. Stroke is the number one cause of severe long-term disability in Europe and is the second biggest killer in the world. Join our team and share your passion for health and communications! With 35 members organisations across Europe, advocacy work at the EU, a European Life after Stroke conference to market and deliver in spring 2021 in Barcelona, and social media to maintain there is a lot of variety in this role and many innovative possibilities.

You will:

  • be an integral member of our team
  • have responsibility for delivery of key communications projects by producing exciting materials and content
  • manage our digital communications: our websites, social media channels and email marketing.

The role

  • Location: home based
  • Self-employed, part time (flexible but minimum of 14 hours a week), 8-month contract, €13,500
  • Deadline to apply midday, 24 July
  • Interviews: via videoconference, Thursday 30 July and Friday 31 July

To apply

If you have any questions about the role, please do not hesitate to get in contact with Arlene Wilkie, Director General, arlene.wilkie@safestroke.eu.

To apply, please submit a covering letter, in English, on no more than two sides of A4 detailing how you fit the person specification outlined in the job description. Please also submit your CV and a completed equal opportunity monitoring form to arlene.wilkie@safestroke.eu.

The full job description and our equal opportunities form can be downloaded via the links below:

Note: we are not using an agency for recruitment purposes

Image by Mohamed Hassan from Pixabay

World Stroke Organisation webinar 8 July 2020

World Stroke Organisation webinar 8 July 2020

The World Stroke Organsiation is running a three part series titled ‘Maintaining Stroke as a Priority’. In this series stroke support organisations from the Americas, Europe and Asia/Oceania have highlighted the impact of COVID 19 on people with lived experience of stroke across the stroke pathway, discussed the responses and innovations of stroke support organisations and signposted to patient education resources available globally. Join them for the last in their Maintaining Stroke as a Priority webinar series, 14:00 GMT/UK time, 09:00 EDT time, on Wednesday 8 July with:

  • Juliet Bouverie (Stroke Association UK): Discharge/transitioning home
  • Patrice Lindsay (Heart and Stroke Canada): Secondary prevention

Registration: https://us02web.zoom.us/webinar/register/WN_90ILNiK9Q2SBMbhZNux6Gg

European Life After Stroke Forum – call for abstracts

European Life After Stroke Forum – call for abstracts

Today we are launching a call for abstracts for the Ist European Life After Stroke Forum which will be held on 12 March 2021.

Our conference programme covers a range of topical issues in life after stroke as well as cutting-edge developments in response to COVID-19. The programme will comprise keynote lectures by eminent invited speakers supplemented by contributed talks and a poster session. Our draft programme is here.

We are now seeking abstracts for the Life After Stroke Forum, which may give those interested an opportunity to present either a ten-minute oral presentation or a poster presentation.

We are calling on for applications in two areas:

  • Scientific applications: this may be for completed for ongoing trials and studies in the broad area of life after stroke.
  • Grab and Steal: this is to share experiences of service developments in life after stroke where these original ideas and innovative practices could be used by others.

For more information on how to apply – click here.

“Life after stroke is a neglected area of the stoke care pathway. It is a particularly important issue for stroke survivors and their carers.

To address this issue, SAFE is organising a first of its kind event in Europe – a one day Life After Stroke Forum.

This will create an opportunity for those who have an interest in this area, whether from a research, policy, advocacy, or support oriented perspective, to come together to share and network.

As chair of the European Life After Stroke Forum scientific conference committee I am delighted that SAFE is launching its call for abstracts today. I am looking forward to receiving excellent applications, whether scientifically, or service development focused, from all over Europe”. Professor Avril Drummond

Image by mohamed Hassan from Pixabay

Different Strokes Online Exercise Classes for Stroke Survivors

Different Strokes Online Exercise Classes for Stroke Survivors

There is no denying it – we are living in unprecedented times. The coronavirus pandemic has turned lives upside down, prevented people from connecting with friends and family, and for many it has put plans and goals on hold.

Different Strokes have recognised that lockdown has left many from the stroke survivor community feeling increasingly isolated and without the vital support that they need. Support groups have been unable to meet and the networks that we once relied on have been harder to access through the new virtual world.

In response to the pandemic and lockdown restrictions, they have developed a brand-new range of virtual services to ensure you are still able to access the support that you need from the comfort of home. In partnership with PhysioFunction and a talented group of exercise instructors, they are now delivering online exercise sessions at 11am every weekday morning. Not only are these sessions specifically tailored for stroke survivors, but they are set at five different levels, reflecting the large variations in stroke survivors’ physical condition and mobility post-stroke.


The sessions range from being wholly seated exercises for people who have no or heavily restricted movement, to advanced classes for people who can walk independently for long distances.  This gives all stroke survivors the opportunity to undertake a form of exercise which is appropriate to their needs.

All the instructors have experience in delivering sessions for Different Strokes local groups and are therefore highly familiar in how to tailor their classes for people with a disability.

To further support the wellbeing of stroke survivors, they have also launched weekly health and wellbeing sessions and are producing weekly interviews with stroke survivors, talking about how they are coping in lockdown and sharing their tips.
Austin Willett, CEO of Different Strokes says: “We know from feedback we have received from stroke survivors how important it is right now for people to be able to exercise and to get advice and support from each other. We are therefore very pleased that we have been able to put these new initiatives together.  We are very grateful for the support we have had from other organisations and individuals to develop these in a very short time period, and it is clear from the initial response that they are of considerable benefit.  Furthermore, we don’t just see these as temporary services during the lockdown period, and we will be looking to source funding to enable us to continue these in the long-term, so that people who are unable to access a local group or who are isolated in other ways, will still be able to benefit from the services that we offer.”

You can access these resources using the following links:
Different Strokes Website: www.differentstrokes.co.uk
Different Strokes YouTube: http://bit.ly/2LmFF8F
Different Strokes Facebook: https://bit.ly/3dK8cPw

About Different Strokes

Different Strokes are a charity based in the UK. The organisation is run by younger stroke survivors for younger stroke survivors. They aim to promote independent stroke recovery and help younger stroke survivors and their families to reclaim their lives.”