The Stroke Media and Advocacy Resource Training (SMART) videos cover a range of topics, such as how stroke support organisations can prepare an advocacy plan, how they can involve stroke survivors in national advocacy work and how they can engage with the local media and influence decision-makers.
Based on our media and advocacy training workshops organised in 2020, the videos are available to view on our YouTube channel to support anyone who is trying to implement the Stroke Action Plan for Europe in their country.
You can watch the SMART videos here: https://bit.ly/3EzhsTN
Visit regularly https://actionplan.eso-stroke.org/ for further materials that will be useful for your stroke advocacy campaign.
The Active Citizenship Network has launched an online survey: The impact of the COVID-19 pandemic on non-communicable and chronic patients’ therapeutic adherence across Europe.
The questionnaire is for patient associations and advocacy groups, including stroke support organisations.
The survey is anonymous but if you contribute, your organisation will be cited in the final report. Click here to fill in the EU survey!
The deadline is 9 December 2021.
If you missed our virtual event last month, do not worry, you will now be able to watch the session at your leisure as it now available on demand at our European Life After Stroke website www.elasf.org
Jana Dobrkovská from stroke support organisation Cerebrum in the Czech Republic, Professor Carlo Semenza (Italy) and Dr Carla Pereira (Portugal) discuss the importance of looking after those who are the caregivers of stroke survivors.
‘Very interesting webinar! Congrats to SAFE TEAM for organizing this excellent webinar’ Event participant
The Global Heart Hub is bringing together the cardiovascular patient community from across the world for its first annual Unite Summit.
This virtual conference will take place over two half days, with the aim of uniting and empowering cardiovascular patients, advocates and organisations on matters of importance to the community. The sessions will delve into:
- The impact of the COVID-19 pandemic on the cardiovascular patient community and how the lessons learned can catalyse change
- How policymaking works, and how patients can use their understanding to advocate effectively
- What policies and guidelines in specific cardiovascular disease areas mean for patients, and what are the associated advocacy issues
- The benefits and drawbacks of digital innovation from a cardiovascular disease patient perspective.
Register for this FREE event at https://globalhearthub.org/unite/
The annual conference of the MEP Interest Group on Brain, Mind and Pain will explore best practices in reducing health inequalities for those living with neurological disorders and chronic pain conditions.
There will be a focus on stigma, access and patient empowerment with a look at population groups prone to experiencing healthcare inequities, such as older people and women.
See agenda and link to register here: https://efna.cplus.live/sign-up/turning-principles-into-action