Merz Partners with SAFE to Launch New Patient-Centric Spasticity Initiative

Merz Partners with SAFE to Launch New Patient-Centric Spasticity Initiative

MERZ SAFE Initiative

Image: lifewithspasticity.com

Frankfurt, Germany, February 28, 2017—Merz Pharmaceuticals has announced the launch of Life With Spasticity, an educational online platform intended to provide comprehensive information and motivational support for stroke survivors who experience poststroke spasticity. Designed by and for individuals living with spasticity, the project is funded by Merz and has been developed in partnership with Stroke Alliance For Europe (SAFE).

“In addition to providing emotional support and motivation for stroke survivors, the ‘Life With Spasticity’ website also offers a meaningful overview of post-stroke spasticity treatments and rehabilitation processes. We want to ensure that stroke survivors and their caregivers receive accurate and accessible information about the treatment options available to them,” explained Jon Barrick, the President of SAFE. “We believe that everyone who has had a stroke should have the opportunity to make the best possible recovery.” (more…)

Merz Partners with SAFE to Launch New Patient-Centric Spasticity Initiative

Joint Action Addressing Chronic Diseases and Healthy Ageing across the Life Cycle (JA-CHRODIS)

Final Conference
27-28 February 2017, Thon City Centre Hotel, Brussels

Addressing Chronic Diseases: How can the EU effectively implement their prevention, management and care across Member States?

JA-CHRODIS’ aim is to contribute to reducing the burden of chronic diseases and to promoting healthy living and active ageing in Europe. Partners gathered highly promising and cost-effective good practices focusing on health promotion and primary prevention as well as the management of multimorbidity and diabetes, with a view to facilitate their exchange and transfer between European countries and regions. (more…)

Study on walking ability shows path to treatment for stroke survivors

Study on walking ability shows path to treatment for stroke survivors

Walking Ability Study Benefits Stroke Survivors

Stroke is the leading cause of disability in older adults in the United States, but research by Clarkson University Associate Professor of Physical Therapy George Fulk and his colleagues is pointing the way to recovery for people who are relearning how to walk.

Using data collected over a number of years from two other large clinical trials, the Potsdam, N.Y. researcher and his team were able to create and analyze one large database. Their results show a six-minute walk test is the strongest predictor of walking activity in the home and community for stroke survivors. That information, in turn, helps map the most effective steps for physical rehabilitation and independence. (more…)

Keep blood pressure down, so the blood clots don’t go up #StrokeEurope

Keep blood pressure down, so the blood clots don’t go up #StrokeEurope

Rena, aged 81 was widowed recently and lives a semi active life as she suffers from borderline heart and kidney failure. Early one morning, she telephoned a neighbor, requesting she come over immediately. Within five minutes the neighbor, an active volunteer in the national stroke NGO, heard how Rena was suddenly unable to hold her coffee cup. A quick examination of seeing one hand drop when asked to lift both and the drooping of one side of her mouth were sufficient to immediately call an ambulance. (more…)

Blogging after stroke: The blog as a rehabilitation tool

Blogging after stroke: The blog as a rehabilitation tool

Written by Alison Turner

Kasia’s Facebook page is filled with the subjects you might expect a 28 year old woman to be interested in – Zumba, cooking, travel and concerns about money. But you’ll also see references to spasticity, hemiparesis, research and, frequently, hospital, because Kasia has survived two strokes. Stroke does happen to young people.

A journalism graduate, living in the Polish city of Szczecin, she writes with an endearing blend of generosity and youthful determination. It’s not surprising that her Polish blog, lewaczka.pl, which she updates 2 or 3 times a week, attracts an average of 200 readers a day. Occasionally, she also writes entries for the English version of her blog, stroketales.com. Her posts are sincere and frank, sharing her own experiences, but also highlighting the trials of her readers, who contact her for support. We spoke via Skype on a Sunday evening in February 2017. (more…)